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Home » Make Connections » Connect with your Local Community

Florida

The Williams Syndrome Association is organized into 19 regions across the United States. Florida is split into two regions. The western panhandle is part of the Gulf Coast region, and the rest of the state is part of the Sunshine region. Each region works to provide resource information and social and educational opportunities to its members. Volunteers are standing by in each state within the regions (parents and grandparents who can provide resources and information) to speak with new families or any families needing support. They are joined by many other volunteers who work hard to facilitate gatherings such as picnics, conferences, and fundraisers. 

Below you will find the name(s) and contact email addresses of your state's Family Support Network volunteer(s).

Blog author, Family Support Specialist:
Nanci Rogers, MSN, CRNA of Delray Beach, Florida
Email

Area of focus: adults

Local Facebook Group:
Family Support Volunteer:
Debby Johnson of Treasure Island, Florida
Email

Areas of focus: adults, local resources, creating housing

Local Facebook Group:
Family Support Volunteer:
Carmen Jury of Miami, Florida
Email

Areas of focus: new diagnosis, school-age, Spanish speaking families.  Instagram handle: carmen_rosa_zegarra_jury  Phone number:  754-299-9800

Local Facebook Group:
Family Support Volunteer:
Theresa McCray of Riviera Beach, Florida
Email

Area of focus: adults.

Local Facebook Group:
Family Support Volunteer:
Paola Martinez of Miami, FL
Email

Areas of focus: Spanish speaking, young children, diagnosis

Local Facebook Group:

Clinics in fl

Nemours Children’s Health System Cardiac Center Williams Syndrome Program

13535 Nemours Parkway 4th Fl.
Orlando, Florida 32827

Dr. Peace Madueme
407-650-7715
Website

Upcoming Events in fl

FSN - Craft & Convo for Parents/Caregivers

Mon, 06/30/2025 - 8:00 pm EDT

Wellness Wednesday Live! with Nick Doris

Wed, 07/09/2025 - 1:00 pm EDT

Adventure Seekers Jamboree - Tuesday Shenanigans!

Tue, 07/15/2025 - 4:00 pm EDT

Adventure Seekers Jamboree - Thursday Hullabaloo!

Thu, 07/17/2025 - 7:00 pm EDT

Wellness Wednesday Live! with Nick Doris

Wed, 08/13/2025 - 1:00 pm EDT

Adventure Seekers Jamboree - Tuesday Shenanigans!

Tue, 08/19/2025 - 4:00 pm EDT

Adventure Seekers Jamboree - Thursday Hullabaloo!

Thu, 08/21/2025 - 7:00 pm EDT

Adventure Seekers Jamboree - Tuesday Shenanigans!

Tue, 09/16/2025 - 4:00 pm EDT

Adventure Seekers Jamboree - Thursday Hullabaloo!

Thu, 09/18/2025 - 7:00 pm EDT

Adventure Seekers Jamboree - Tuesday Shenanigans!

Tue, 10/21/2025 - 4:00 pm EDT

Adventure Seekers Jamboree - Thursday Hullabaloo!

Thu, 10/23/2025 - 7:00 pm EDT

Adventure Seekers Jamboree - Tuesday Shenanigans!

Tue, 11/18/2025 - 4:00 pm EST

Adventure Seekers Jamboree - Thursday Hullabaloo!

Thu, 11/20/2025 - 7:00 pm EST

Adventure Seekers Jamboree - Tuesday Shenanigans!

Tue, 12/16/2025 - 4:00 pm EST

Adventure Seekers Jamboree - Thursday Hullabaloo!

Thu, 12/18/2025 - 7:00 pm EST

Dream Team Saturdays - For Adventure Seekers 38+

Sat, 12/27/2025 - 2:00 pm EST

Contact us

243 Broadway Unit 9188
Newark, NJ 07104

info@williams-syndrome.org

248.244.2229
800.806.1871
248.244.2230 fax

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Position on Inclusion

The WSA upholds the following positions on inclusion. We believe that: 

  • everyone benefits when individuals with WS are meaningfully included in educational, work, and community settings 
  • individuals with WS should receive all necessary supports and services to fully participate in their family lives, communities, and society as a whole
  • high expectations should be the norm, and individuals with WS and their families should decide how they best learn, work, and enjoy social settings
  • “inclusion” is not one-size-fits-all, and will look different for each family based on each individual’s desires and needs
  • inclusion creates a sense of belonging in society, meaningful relationships, and opportunities to achieve dreams

Funding priorities

Funding priorities pie chart.

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