Dear Williams syndrome community,
WSA Blog
Feb 25 2025 | 
Sarah Schaefer
Sarah SchaeferDear Williams syndrome community,
Dec 18 2024 | WSA Staff
A Tribute to Elena and Her Wonderful Life
by
Stefanka Kitanovska
On Nov 24, 2024, I lost my wonderful and amazing sister Elena. She was 45.
Nov 22 2024 | WSA Staff
from T H E P A L A C E O F G R E E N P O R C E L A I N blog
Vitor Zimmerer's web s p a c e (in zwei Sprachen)
May 01 2023 | 
Cyndra Cole
Cyndra Cole
Happy Williams Syndrome Awareness Month! As Board President, I’m often asked “What’s your elevator pitch? How do you define Williams syndrome to someone that’s never heard of it?” Here’s where I start - Williams syndrome is a rare genetic condition caused by a missing piece of genetic material on chromosome 7.
Jan 20 2023 | WSA Staff
Searching for social and recreational activities for an adult with Williams syndrome? Or, as a family member or friend, are you hoping to volunteer more with the WS community?
Jun 08 2022 | 
Terry Monkaba
Terry MonkabaCelebrating 40 years and all that we’ve accomplished as an organization and a community is a wonderful milestone. We’ve learned so much about Williams syndrome and provided a solid foundation for increased learning and excellent care for the future.
Apr 25 2022 | Terry Monkaba
Terry Monkaba
Dr. Ursula Bellugi, a pioneer in the study of Williams syndrome and a friend to WSA families since 1981, passed away on Sunday, April 17 at the age of 91. Dr. Bellugi was a leading researcher at the Salk Institute for Biological Studies for nearly 50 years – breaking barriers in the early years as a female scientist.
Mar 15 2022 | 
Robin Pegg, EdD, COTA/L, ATP, ROH
Robin Pegg, EdD, COTA/L, ATP, ROH
As the Education Consultant for the WSA, I have the opportunity to support many families as they navigate the special education system. Usually, this is exciting as I get to meet teachers and teams and help them understand how to teach their students with Williams syndrome (WS). Usually, this is the case.
Feb 08 2022 | Terry Monkaba
Terry MonkabaThe WSA celebrates its 40th anniversary this year, and there is great cause for celebration. The future for individuals with Williams syndrome looks much different today than it did back in 1982 when the Association was officially chartered. And the future for the WSA and the organization’s ability to provide resources and support for families has changed dramatically too.