The Williams Syndrome Association (WSA) was formed in 1982 by, and for, families of individuals with Williams syndrome to provide the resources and referrals you need now, and a strong and supportive community for a lifetime.

It is the most comprehensive resource for people and families living with Williams syndrome as well as doctors, researchers and educators.  The WSA provides resources, support and the latest medical information to help your child today and throughout his/her life.  By joining, you’ll become part of the largest organization dedicated to improving the lives of people living with Williams syndrome.


The Williams Syndrome Association (WSA) works to advance the interests of all individuals with Williams syndrome throughout their lifespan by providing programming and resources, supporting research, promoting partnerships and connections, and ensuring that the infrastructure of the organization has the capacity to lead our community toward its goals.

We support our mission by:

  • Providing information and emotional support to individuals with characteristics of Williams syndrome, their families, and the professionals who work with them
  • Developing programs and services to help build strengths and meet challenges from early childhood through adulthood
  • Increasing public awareness and understanding of Williams syndrome, and
  • Encouraging and supporting research into a wide range of issues related to Williams syndrome


We want to help ensure that all individuals with Williams syndrome have the support they need throughout their lifespan to live healthy, self-directed, productive, and meaningful lives. To achieve this vision, individuals with Williams syndrome must be fully included in educational, work, and community settings. 

Active involvement with the WSA community provides vital, day-to-day support. The WSA has a small paid staff and hundreds of volunteers who help us organize events and support families in communities nationwide. We are parents, caregivers, and relatives of people with Williams syndrome as well as the professionals who work with them. We know first-hand the challenges of raising and caring for an individual living with the challenges of Williams syndrome. No matter the age or stage of your family member with WS, you are not alone. The WSA offers support and will help you navigate the challenges from diagnosis through adulthood.


Williams syndrome is rare. In general, people who are not affected personally or don't have a family member or friend who has been affected know little or nothing about it. We need to change that. It is only through awareness that we can attract the research interest and funding support that is needed to solve the many unanswered questions we all have. May is "officially" Williams syndrome awareness month, but we work to raise awareness of Williams syndrome 365 days each year...and you can help. Learn more about how you can help to raise awareness for Williams syndrome.