The Williams Syndrome Association is organized into 19 regions across the United States. Florida is split into two regions. The western panhandle is part of the Gulf Coast region, and the rest of the state is part of the Sunshine region. Each region works to provide resource information and social and educational opportunities to its members. Volunteers are standing by in each state within the regions (parents and grandparents who can provide resources and information) to speak with new families or any families needing support. They are joined by many other volunteers who work hard to facilitate gatherings such as picnics, conferences, and fundraisers.
Below you will find the name(s) and contact email addresses of your state's Family Support Network volunteer(s).
Area of focus: adults
Areas of focus: adults, local resources, creating housing
Areas of focus: new diagnosis, school-age, Spanish speaking families. Instagram handle: carmen_rosa_zegarra_jury Phone number: 754-299-9800
Area of focus: adults.
Paola Martinez was born in Puerto Rico and moved to Miami in high school, where she later earned a degree in Psychology with a minor in Portuguese. Her academic background reflects a lifelong passion for people, connection, and cross-cultural understanding.
Paola’s greatest education, however, came through her son, Enrique, whose diagnosis of Williams syndrome introduced her to the world of therapies, research, advocacy, and early intervention. Through this journey, she developed a deep, firsthand understanding of the power of access to care and strong support networks.
Inspired by what research, community, and shared knowledge have made possible for her own family, Paola became a dedicated advocate and fundraiser for the Williams Syndrome Association. Her work is driven by gratitude and a belief that when families are informed and supported, lives are truly changed.
The Williams Syndrome Association provides this directory for information only. We do not endorse, recommend, or certify any organization, provider, or service listed here. Please review and verify services before engaging with any organization.
The Williams Syndrome Association provides this directory for information only. We do not endorse, recommend, or certify any organization, provider, or service listed here. Please review and verify services before engaging with any organization.
