Skip to main content
Williams Syndrome Association logo.
Donate
  • Events
  • Join
  • Shop
  • Español
  • Forums
  • About Us
    • Overview
    • Structure & Administration
      • Board of Trustees
      • Medical Advisors
      • Executive Director & Team
      • Consultants & Partners
    • Position Statements
    • Programs
    • Strategic Plan
    • Newsletters
    • Media & Press Center
  • Education
    • Overview
    • Getting Started in School
    • Creating an IEP
    • Creating a Vision Statement
    • Education Strategies
    • Testing & Evaluation Strategies
    • Therapeutic Strategies for Education
    • Transition Strategies - High School to Adult Life
    • Life Skills & Post Secondary Programs
    • Featured Education Resources
    • Virtual Education Resources
    • Convention
    • Resources
  • Medical
    • Overview
    • Diagnosing Williams Syndrome
    • Healthcare Guidelines
    • Anesthesia Concerns
    • Cardiovascular Concerns
    • Gastrointestinal Concerns
    • Neurodevelopment & Behavioral Health
    • COVID-19 Vaccine Recommendations
    • Williams Syndrome Clinics
    • renovascular hypertension collaborative
    • Resources
    • Research
      • Overview
      • Current Studies
      • Grant Opportunities
      • Collaborative Registry for WS
      • Renovascular Hypertension Collaborative
  • Life with WS
    • Overview
    • What is Williams syndrome?
      • Overview
      • General Information
      • Diagnosing WS
      • New Diagnosis: First Steps
      • Therapeutic Interventions
      • Talking to Children about WS
      • Frequently Asked Questions
    • Adult Life
      • Overview
      • Transition Strategies - High School to Adult Life
      • Life Skills & Post Secondary Programs
      • Housing
      • Employment
      • Adventure Seekers
    • Family Support
      • Overview
      • Family Support Network
      • Connect with Others
      • Available Aid and Assistance
      • Financial Planning
      • Grandparents
      • Siblings
      • Resource Organizations
      • International Organizations
      • Attend an Event
    • Programs
      • Become a Member
      • Virtual Programs
      • Conferences & Convention
      • Camps
      • Adventure Seekers
      • Financial Aid & Scholarships
      • Grant Opportunities
    • Webinars
    • Resources
    • Frequently Asked Questions
    • Podcast
    • WS In the News
    • Blog
    • Convention
  • Get Involved
    • Overview
    • Become a Member
    • Make connections
    • Volunteer
    • Friends of the WSA Spotlights
    • Share Your Story
    • Event Calendar
    • Host a Social/Connection Event
    • 2023 Walks4Williams
    • Awareness Month
    • Fundraise
    • Donate
    • Your Contributions at Work
    • Shop our Merch
    • Contact the WSA

You are here

Home » Make Connections » Connect with your Local Community

Michigan

The Williams Syndrome Association is organized into 19 regions across the United States. Michigan is split into two regions. The upper northwest portion of Michigan is part of the Midwest region, and the rest of Michigan is part of the Great Lakes region. Each region works to provide resource information and social and educational opportunities to its members. Volunteers are standing by in each state within the regions (parents and grandparents who can provide resources and information) to speak with new families or any families needing support. They are joined by many other volunteers who work hard to facilitate gatherings such as picnics, conferences, and fundraisers. 

Below you will find the name(s) and contact email addresses of your state's Family Support Network volunteer(s).

Family Support Volunteer:
Melissa Kerr of Macomb, Michigan
Email

Areas of focus: new diagnosis, young children

Local Facebook Group:
Family Support Specialist:
Amy Davidson of Shelby Township, MI
Email

Areas of focus: new diagnosis, children, social events

Local Facebook Group:
Family Support Volunteer:
Beth Kohler of Monroe, Michigan
Email

Areas of focus: adults, state resources, WS/Autism dual diagnosis.

Local Facebook Group:
Family Support Volunteer:
Marty Levinson, MD of Royal Oak, Michigan
Email

Areas of support: All ages, medical

Local Facebook Group:

Upcoming Events in MI

FSN - Parents/Caregivers of Adults & Children with WS and Anxiety Meeting

Tue, 10/03/2023 - 8:00 pm EDT

FSN - Parents/Caregivers of Children 4 and under with WS

Mon, 10/09/2023 - 8:00 pm EDT

FSN - Parents/Caregivers of Teens & Tweens with WS

Tue, 10/10/2023 - 8:00 pm EDT

FSN - Parents/Caregivers of Adults with WS and Challenging Behaviors Meeting

Wed, 10/11/2023 - 8:00 pm EDT

FSN - Grandparent Family Support Group

Thu, 10/12/2023 - 8:00 pm EDT

FSN - Complex Communicators and Feeding Challenges Group for Parents/Caregivers

Mon, 10/16/2023 - 8:00 pm EDT

FSN - Grief Support for Parents/Caregivers who have lost someone with WS

Wed, 10/18/2023 - 8:00 pm EDT

FSN - Parents/Caregivers of Individuals with WS-Autism Dual Diagnosis

Thu, 10/19/2023 - 8:00 pm EDT

FSN - Only Child Family Support Group

Wed, 10/25/2023 - 8:00 pm EDT

Contact us

243 Broadway #9188

Newark, NJ 07104

info@williams-syndrome.org

248.244.2229
800.806.1871
248.244.2230 fax

Follow us

Inclusion statement

The WSA upholds the following positions on inclusion.  We believe that:

  • everyone benefits when individuals with WS are meaningfully included in educational, work, and community settings
  • individuals with WS should receive all necessary supports and services to fully participate in their family lives, communities, and society as a whole
  • high expectations should be the norm, and that individuals with WS and their families should decide how they best learn, work, and enjoy social settings
  • “inclusion” is not one-size-fits-all, and will look different for each family based on each individual’s desires and needs
  • inclusion creates a sense of belonging in society, meaningful relationships, and opportunities to achieve dreams

Funding priorities

Funding priorities pie chart.

  • Privacy Policy
  • Disclaimer
  • Non-discrimination statement
  • media & press center
  • 501(c)(3) organization
Copyright © 2023 Williams Syndrome Association | Web design
Online Research Opportunity

There's still time to participate in this survey about the healthcare transition for adults with Williams syndrome. By providing your input, you contribute to early research that can impact the quality of care received in the future! This online survey is intended for caregivers of an adult (18+) with Williams syndrome.

If you previously began taking the survey but still need to complete it, you still have time to finish it! The survey is available until October 19th.

participate in the survey