A Message to the WSA Community On Recent Losses and Sudden Cardiac Death
The Williams syndrome community has faced several heartbreaking events recently, including a number of sudden cardiac deaths. We grieve each person we’ve lost, and we extend our deepest sympathies to their families and loved ones during this profoundly difficult time.
Many of you have reached out to me directly with your concerns. As the parent of a young adult with Williams syndrome, my son Matthew, I understand how frightening and powerless this feels. Your need for guidance and support is our highest priority.
Dr. Ursula Bellugi, a pioneer in the study of Williams syndrome and a friend to WSA families since 1981, passed away on Sunday, April 17 at the age of 91. Dr. Bellugi was a leading researcher at the Salk Institute for Biological Studies for nearly 50 years – breaking barriers in the early years as a female scientist. As a researcher of the highest caliber, she received many prestigious awards for her work in the field of linguistics.