The WSA’s Knowledge Network is our team of expert consultants formed to support families in Education, IEP/Transitions, Therapy, Individual & Couples Therapeutic Support, and Adult Services -  all areas that are critical to the success of individuals with Williams syndrome. These areas are essential for supporting families and educators in providing the best possible care and guidance.

WSA members are eligible for 3 hours of support per year, across all disciplines, to use as they need, at no cost to them. Some families work with only one specialist - others multiples. The WSA Knowledge Network consultants independent contractors, compensated by the WSA. We’re thrilled to be able to offer this support to families throughout the country, and are grateful for contributions from individual donors and other charitable organizations that make this network possible.

These services are offered to any of our members, from age 3 through adulthood. Services most commonly used by age of the individual with WS are as follows:

  • Preschool (ages 3 - 5/6): Education, Early Intervention, IEP, SLP, OT, PT, BCBA, AAC
  • Elementary (ages 5/6 - 11/12): Education, IEP, SLP, OT, PT, BCBA, AAC, Reading, Math
  • Secondary/Post-Secondary (ages 12 - 22): Education, IEP, Transition, SLP, OT, PT, BCBA, Reading, Math, Adult Supports
  • Adulthood: Transition, BCBA/social skills, adult supports, family therapist

We use a software platform to maintain confidentiality, manage intake, monitor consultation progress, create a collaborative environment among our entire network of consultants, and track consultation hour usage and payment to consultants. 

Support is currently available for the following areas:

  • Education: Children and young adults with Williams syndrome require specialized teaching methods that build on their strengths. Our educational consultants help schools and teachers create effective, tailored learning environments.
  • IEP/ School Transitions: Navigating the special education system and planning for future transitions can be overwhelming. Our IEP/Transitions consultants act as coaches, guiding families through IEP development and post-secondary planning, while building capacity in the caregivers skillsets.
  • Therapy (PT/OT/SLP)
    • Speech Therapy: Many individuals with Williams syndrome experience significant speech and language challenges. Our speech consultants provide expert support for families and professionals, helping to ensure that individuals with WS receive high quality, targeted services that directly address their needs
    • Occupational Therapy: Individuals with WS experience significant challenges with visual perceptual tasks and fine motor tasks. Occupational therapy is an essential support to developing these skills and where necessary, implementing accommodations or adaptations to mitigate the struggles these deficits create when individuals attempt to complete daily tasks.
    • Physical Therapy: (Support coming soon): The gene deletion that causes WS directly impacts the elastin gene, causing tone abnormalities or imbalances, contractures, struggles with meeting motor milestones and struggles with overall coordination. Physical therapists provide crucial support and consultation to ensure that individuals with WS are able to be as active and productive as possible.
  • Behavioral Consultation & Support: Individuals with WS sometimes struggle with learning socially appropriate behaviors.  Our Behavioral Specialists have studied these patterns for years and provide consultation and support to families and school teams which encourage the growth and development of pro-social behaviors.  
  • Individual & Couples Therapeutic Support
    • Relationships & sexuality: Individuals with WS often struggle with boundaries in relationships, and have difficulty discussing romantic feelings and sexual relationships. Our specialists provide a safe space for caregivers to discuss these topics. 
    • Couples Support: Raising a child with differing needs isn’t easy. Our specialist offers support to couples who are raising a child with WS.
    • Grief Support: Grief comes in many forms - navigating a new diagnosis, a younger sibling “passing up” their older sibling with WS, missed “milestone events” as someone ages, the anticipated death of a parent of the individual with WS, the death of an individual with WS, and more. We offer support in all of these cases.
  • Navigating and Advocating Before and During a Hospital Stay - There’s nothing easy about having a child in the hospital, but when you have a medically complex child, the challenges can expand exponentially. We offer support around navigating and advocating for your child when they’re in the hospital.
  • Adult Services: Most individuals with WS will need support of some kind into adulthood, in the form of SSI, SSDI, assistance with work or housing placement (coming soon), or life planning (coming soon). Adult services specialists help determine the needs our members have and help match them with the services that will best support those individual needs.

We're actively seeking consultants for additional areas of support. 

You'll find a list of available consultants and the links to book their services below. If you're unsure who to book with, or if you need support that isn't listed here, please use this GENERAL INQUIRY LINK.