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Home » Make Connections » Connect with your Local Community

Indiana

The Williams Syndrome Association is organized into 19 regions across the United States. Indiana is part of the Great Lakes region. Each region works to provide resource information and social and educational opportunities to its members. Volunteers are standing by in each state within the regions (parents and grandparents who can provide resources and information) to speak with new families or any families needing support. They are joined by many other volunteers who work hard to facilitate gatherings such as picnics, conferences, and fundraisers. 

Below you will find the name(s) and contact email addresses of your state's Family Support Network volunteer(s).

Family Support Specialist:
Bailey Nelson of West Lafayette, Indiana
Email
Local Facebook Group:
Family Support Volunteer:
Megan Prygoski of North Liberty, IN
Email

Areas of focus: New Diagnosis, Early childhood, Twins (one with WS)

Local Facebook Group:

Upcoming Events in IN

FSN - Adult Siblings of Individuals with WS

Sun, 05/18/2025 - 8:00 pm EDT

FSN - Parents/Caregivers of Children (Under 18) with WS and Anxiety Meeting

Mon, 05/19/2025 - 8:00 pm EDT

Adventure Seekers Jamboree - Tuesday Shenanigans!

Tue, 05/20/2025 - 4:00 pm EDT

FSN - Navigating Transition from High School Support

Tue, 05/20/2025 - 8:00 pm EDT

FSN - Parents/Caregivers of Adults with WS and Challenging Behaviors Meeting

Wed, 05/21/2025 - 8:00 pm EDT

Cruise 301 - Last Looks and Cruising Craziness

Wed, 05/21/2025 - 8:00 pm EDT

Adventure Seekers Jamboree - Thursday Hullabaloo!

Thu, 05/22/2025 - 7:00 pm EDT

FSN - Parents/Caregivers of Individuals with WS-Autism Dual Diagnosis

Thu, 05/22/2025 - 8:00 pm EDT

FSN - Parents/Caregivers of Adults with WS and Anxiety Meeting

Tue, 05/27/2025 - 8:00 pm EDT

FSN - Craft & Convo for Parents/Caregivers

Thu, 05/29/2025 - 8:00 pm EDT

Adventure Seekers Jamboree - Thursday Hullabaloo!

Thu, 06/12/2025 - 7:00 pm EDT

Adventure Seekers Jamboree - Tuesday Shenanigans!

Tue, 06/17/2025 - 4:00 pm EDT

WSA Adventure Seekers Cruise

Sat, 06/21/2025 - 12:00 am EDT to Sat, 06/28/2025 - 12:00 am EDT

Adventure Seekers Jamboree - Tuesday Shenanigans!

Tue, 07/15/2025 - 4:00 pm EDT

Adventure Seekers Jamboree - Thursday Hullabaloo!

Thu, 07/17/2025 - 7:00 pm EDT

Adventure Seekers Jamboree - Tuesday Shenanigans!

Tue, 08/19/2025 - 4:00 pm EDT

Adventure Seekers Jamboree - Thursday Hullabaloo!

Thu, 08/21/2025 - 7:00 pm EDT

Adventure Seekers Jamboree - Tuesday Shenanigans!

Tue, 09/16/2025 - 4:00 pm EDT

Adventure Seekers Jamboree - Thursday Hullabaloo!

Thu, 09/18/2025 - 7:00 pm EDT

Adventure Seekers Jamboree - Tuesday Shenanigans!

Tue, 10/21/2025 - 4:00 pm EDT

Adventure Seekers Jamboree - Thursday Hullabaloo!

Thu, 10/23/2025 - 7:00 pm EDT

Adventure Seekers Jamboree - Tuesday Shenanigans!

Tue, 11/18/2025 - 4:00 pm EST

Adventure Seekers Jamboree - Thursday Hullabaloo!

Thu, 11/20/2025 - 7:00 pm EST

Adventure Seekers Jamboree - Tuesday Shenanigans!

Tue, 12/16/2025 - 4:00 pm EST

Adventure Seekers Jamboree - Thursday Hullabaloo!

Thu, 12/18/2025 - 7:00 pm EST

Dream Team Saturdays - For Adventure Seekers 38+

Sat, 12/27/2025 - 2:00 pm EST

Contact us

243 Broadway Unit 9188
Newark, NJ 07104

info@williams-syndrome.org

248.244.2229
800.806.1871
248.244.2230 fax

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Position on Inclusion

The WSA upholds the following positions on inclusion. We believe that: 

  • everyone benefits when individuals with WS are meaningfully included in educational, work, and community settings 
  • individuals with WS should receive all necessary supports and services to fully participate in their family lives, communities, and society as a whole
  • high expectations should be the norm, and individuals with WS and their families should decide how they best learn, work, and enjoy social settings
  • “inclusion” is not one-size-fits-all, and will look different for each family based on each individual’s desires and needs
  • inclusion creates a sense of belonging in society, meaningful relationships, and opportunities to achieve dreams

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