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Resources (Search by State)

The Arc

https://thearc.org/find-a-chapter/ 

The Arc of the United States is the nation’s leading nonprofit organization advocating for and supporting people with intellectual and developmental disabilities (IDD) and their families.

Centers for Independent Living

https://www.ilru.org/projects/cil-net/cil-center-and-association-directory

ILRU, founded in 1977, has a long history of providing research, education and consultation in the areas of independent living, home and community-based services, and the Americans with Disabilities Act.

HUD - Public Housing Agency

https://www.hud.gov/program_offices/public_indian_housing/pha/contacts

Information and resources for homebuyers, homeowners, property residents/renters, and people experiencing homelessness.

State Housing Finance Authority

https://www.ncsha.org/housing-help/ 

For more than 50 years, state Housing Finance Agencies (HFAs) have played a central role in the nation’s affordable housing system, delivering financing to make possible the purchase, development, and rehabilitation of affordable homes and rental apartments for low- and middle-income households.

United Way 2-1-1

https://www.211.org/

United Way 2-1-1 is the most comprehensive source of information about local resources and services in the country.

ADRC / Eldercare Locator (Aging & Disability)

https://eldercare.acl.gov/home 

Eldercare Locator is a public service of the Administration for Community Living connecting you to services for older adults and their families.

Habitat for Humanity

https://www.habitat.org/volunteer/near-you 

Habitat for Humanity is a movement of people in your local area and around the world, working together to build more prosperous and vibrant communities by making sure everyone has a safe, affordable place to call home.

Family Voices USA Affiliates

https://familyvoices.org/affiliates/ 

Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  They connect a network of family-led organizations across the United States that provide support to families of CYSHCN.

Special Needs Alliance (Find an Attorney)

https://www.specialneedsalliance.org/find-an-attorney/ 

Empowering people with disabilities and their families to lead lives of dignity and purpose through expert legal planning and advocacy.

Wrightslaw (Special Education Advocacy)

https://www.wrightslaw.com/ 

Parents, advocates, teachers, and attorneys come to Wrightslaw for reliable, up-to-date information about special education law and advocacy for children with disabilities.

Olmstead Rights Information

https://www.olmsteadrights.org/self-helptools/advocacy-resources/ 

Olmstead is the most important U.S. Supreme Court decision for people with disabilities.  The 1999 Supreme Court decision was based on the Americans with Disabilities Act (ADA).  This website provides Olmstead stories in its "I am Olmstead" pages, self-help tools and resources, and legal advocacy tools.  

Best Buddies USA

https://www.bestbuddies.org/us-programs/

Best Buddies is the largest organization dedicated to ending the social, physical and economic isolation of the 200 million people worldwide with intellectual and developmental disabilities (IDD).

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Contact us

243 Broadway Unit 9188
Newark, NJ 07104

info@williams-syndrome.org

248.244.2229
800.806.1871
248.244.2230 fax

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Position on Inclusion

The WSA upholds the following positions on inclusion. We believe that: 

  • everyone benefits when individuals with WS are meaningfully included in educational, work, and community settings 
  • individuals with WS should receive all necessary supports and services to fully participate in their family lives, communities, and society as a whole
  • high expectations should be the norm, and individuals with WS and their families should decide how they best learn, work, and enjoy social settings
  • “inclusion” is not one-size-fits-all, and will look different for each family based on each individual’s desires and needs
  • inclusion creates a sense of belonging in society, meaningful relationships, and opportunities to achieve dreams

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Funding priorities pie chart.

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