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Home » Make Connections » Connect with your Local Community

Ohio

The Williams Syndrome Association is organized into 19 regions across the United States. Ohio is part of the Great Lakes region. Each region works to provide resource information and social and educational opportunities to its members. Volunteers are standing by in each state within the regions (parents and grandparents who can provide resources and information) to speak with new families or any families needing support. They are joined by many other volunteers who work hard to facilitate gatherings such as picnics, conferences, and fundraisers. 

Below you will find the name(s) and contact email addresses of your state's Family Support Network volunteer(s).

Blog author, Family Support Volunteer:
Lisa Portune of Loveland, Ohio
Email

Areas of focus: teens, adults, IEPs, advocacy, visioning/vision statements

Local Facebook Group:
Family Support Volunteer:
Sharon Amato of Cincinnatti, Ohio
Email

Area of focus: adults

Local Facebook Group:
Family Support Volunteer:
Lauren Kirby of Strongsville, Ohio
Email

Area of focus: new diagnosis, children

Local Facebook Group:
Family Support Specialist:
Julie Oglesbee of Lakeside, Ohio
Email

Area of focus: new diagnosis, children, teens, grandparents

Local Facebook Group:

Clinics in OH

Nationwide Children's Hospital logo

Nationwide Children's Hospital

700 Children's Dr. Suite T1A
Columbus, Ohio 43205

Directors: Jennifer Walton, MD and Marilee Martens, PhD
Julie Piercefield, Clinic Coordinator (614) 722-6115
Website

The Williams syndrome Clinic multidisciplinary team includes a Developmental-Behavioral Pediatrician, Psychologist, Speech/Language Pathologist, Music Therapist, Occupational Therapist, Physical Therapist, Nurse, and Social Worker.

Upcoming Events in OH

FSN - Parents/Caregivers of Adults & Children with WS and Anxiety Meeting

Tue, 10/03/2023 - 8:00 pm EDT

FSN - Parents/Caregivers of Children 4 and under with WS

Mon, 10/09/2023 - 8:00 pm EDT

FSN - Parents/Caregivers of Teens & Tweens with WS

Tue, 10/10/2023 - 8:00 pm EDT

FSN - Parents/Caregivers of Adults with WS and Challenging Behaviors Meeting

Wed, 10/11/2023 - 8:00 pm EDT

FSN - Grandparent Family Support Group

Thu, 10/12/2023 - 8:00 pm EDT

FSN - Complex Communicators and Feeding Challenges Group for Parents/Caregivers

Mon, 10/16/2023 - 8:00 pm EDT

FSN - Grief Support for Parents/Caregivers who have lost someone with WS

Wed, 10/18/2023 - 8:00 pm EDT

FSN - Parents/Caregivers of Individuals with WS-Autism Dual Diagnosis

Thu, 10/19/2023 - 8:00 pm EDT

FSN - Only Child Family Support Group

Wed, 10/25/2023 - 8:00 pm EDT

Contact us

243 Broadway #9188

Newark, NJ 07104

info@williams-syndrome.org

248.244.2229
800.806.1871
248.244.2230 fax

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Inclusion statement

The WSA upholds the following positions on inclusion.  We believe that:

  • everyone benefits when individuals with WS are meaningfully included in educational, work, and community settings
  • individuals with WS should receive all necessary supports and services to fully participate in their family lives, communities, and society as a whole
  • high expectations should be the norm, and that individuals with WS and their families should decide how they best learn, work, and enjoy social settings
  • “inclusion” is not one-size-fits-all, and will look different for each family based on each individual’s desires and needs
  • inclusion creates a sense of belonging in society, meaningful relationships, and opportunities to achieve dreams

Funding priorities

Funding priorities pie chart.

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