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Home » Make Connections » Connect with your Local Community

Ohio

The Williams Syndrome Association is organized into 19 regions across the United States. Ohio is part of the Great Lakes region. Each region works to provide resource information and social and educational opportunities to its members. Volunteers are standing by in each state within the regions (parents and grandparents who can provide resources and information) to speak with new families or any families needing support. They are joined by many other volunteers who work hard to facilitate gatherings such as picnics, conferences, and fundraisers. 

Below you will find the name(s) and contact email addresses of your state's Family Support Network volunteer(s).

Blog author, Family Support Volunteer:
Lisa Portune of Loveland, Ohio
Email

Areas of focus: teens, adults, IEPs, advocacy, visioning/vision statements

Local Facebook Group:
Family Support Volunteer:
Sharon Amato of Cincinnatti, Ohio
Email

Area of focus: adults

Local Facebook Group:
Family Support Volunteer:
Lauren Kirby of Strongsville, Ohio
Email

Area of focus: new diagnosis, children

Local Facebook Group:
Family Support Specialist:
Julie Oglesbee of Lakeside, Ohio
Email

Area of focus: new diagnosis, children, teens, grandparents

Local Facebook Group:

Clinics in OH

Nationwide Children's Hospital logo

Nationwide Children's Hospital

700 Children's Dr. Suite T1A
Columbus, Ohio 43205

Directors: Jennifer Walton, MD and Marilee Martens, PhD
Julie Piercefield, Clinic Coordinator (614) 722-6115
Website

The Williams syndrome Clinic multidisciplinary team includes a Developmental-Behavioral Pediatrician, Psychologist, Speech/Language Pathologist, Music Therapist, Occupational Therapist, Physical Therapist, Nurse, and Social Worker.

Upcoming Events in OH

FSN - December Support Parent/Caregiver Meet-up #1

Mon, 12/11/2023 - 8:00 pm EST

FSN - Grief Support for Parents/Caregivers who have lost someone with WS

Wed, 12/13/2023 - 8:00 pm EST

FSN - December Support Parent/Caregiver Meet-up #2

Wed, 12/27/2023 - 8:00 pm EST

FSN - Parents/Caregivers of Adults & Children with WS and Anxiety Meeting

Wed, 01/03/2024 - 8:00 pm EST

FSN - Parents/Caregivers of Children 4 and under with WS

Mon, 01/08/2024 - 8:00 pm EST

FSN - Parents/Caregivers of Teens & Tweens with WS

Tue, 01/09/2024 - 8:00 pm EST

FSN - Parents/Caregivers of Adults with WS and Challenging Behaviors Meeting

Wed, 01/10/2024 - 8:00 pm EST

FSN - Grandparent Family Support Group

Thu, 01/11/2024 - 8:00 pm EST

FSN - Complex Communicators and Feeding Challenges Group for Parents/Caregivers

Mon, 01/15/2024 - 8:00 pm EST

FSN - Grief Support for Parents/Caregivers who have lost someone with WS

Wed, 01/17/2024 - 8:00 pm EST

FSN - Parents/Caregivers of Individuals with WS-Autism Dual Diagnosis

Thu, 01/18/2024 - 8:00 pm EST

FSN - Only Child Family Support Group

Wed, 01/24/2024 - 8:00 pm EST

Contact us

243 Broadway #9188
Newark, NJ 07104

info@williams-syndrome.org

248.244.2229
800.806.1871
248.244.2230 fax

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Inclusion statement

The WSA upholds the following positions on inclusion.  We believe that:

  • everyone benefits when individuals with WS are meaningfully included in educational, work, and community settings
  • individuals with WS should receive all necessary supports and services to fully participate in their family lives, communities, and society as a whole
  • high expectations should be the norm, and individuals with WS and their families should decide how they best learn, work, and enjoy social settings
  • “inclusion” is not one-size-fits-all, and will look different for each family based on each individual’s desires and needs
  • inclusion creates a sense of belonging in society, meaningful relationships, and opportunities to achieve dreams

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As we usher in an exciting period of growth, YOU are the key to our success! Our goal for 2024 and beyond is to focus on CONNECTIONS, RESOURCES & RESEARCH. We need your help today! Your support will unlock the WSA's potential & create a lasting impact.

You may donate here electronically or Text GIVEWSA to 41444 or mail a check, payable to Williams Syndrome Association, to 243 Broadway, #9188, Newark, NJ 07104. WSA is a 501(c)3 nonprofit organization, tax ID #22-3305007. Donations are tax-deductible as allowed by law.

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