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Home » Make Connections » Connect with your Local Community

New York

The Williams Syndrome Association is organized into 19 regions across the United States. New York is split into three regions. The southeastern portion of the state is part of the NYC Metro region, the remaining eastern portion of New York is part of the New England region, and the western portion of the state is part of the Tri-State region. Each region works to provide resource information and social and educational opportunities to its members. Volunteers are standing by in each state within the regions (parents and grandparents who can provide resources and information) to speak with new families or any families needing support. They are joined by many other volunteers who work hard to facilitate gatherings such as picnics, conferences, and fundraisers. 

Below you will find the name(s) and contact email addresses of your state's Family Support Network volunteer(s).

Family Support Volunteer:
Nora Beger of Williamsville, New York
Email

Area of focus: adults

Local Facebook Group:
Family Support Volunteer:
Melissa Felsher of New York, New York
Email

Area of focus: new diagnosis, children, teens.

Local Facebook Group:
Family Support Volunteer:
Judy Flamm of Ardsley, New York
Email

Area of focus: adults

Local Facebook Group:
Family Support Volunteer:
Tzira Lamm of Brooklyn, New York
Email

Area of focus: new diagnosis, children

Local Facebook Group:

Clinics in NY

Children's Hospital of Montefiore logo

Children's Hospital of Montefiore Center for Congenital Disorders

3415 Bainbridge Ave.
Bronx, New York 10467

Dr. Robert Marion, Director
Miranda Di Biase, Clinic Coordinator 718-741-2514
Website

Upcoming Events in NY

Buffalo, NY Fall Picnic

Sat, 09/02/2023 - 11:00 am EDT to Sat, 10/21/2023 - 2:00 pm EDT

FSN - Parents/Caregivers of Adults & Children with WS and Anxiety Meeting

Tue, 10/03/2023 - 8:00 pm EDT

FSN - Parents/Caregivers of Children 4 and under with WS

Mon, 10/09/2023 - 8:00 pm EDT

FSN - Parents/Caregivers of Teens & Tweens with WS

Tue, 10/10/2023 - 8:00 pm EDT

FSN - Parents/Caregivers of Adults with WS and Challenging Behaviors Meeting

Wed, 10/11/2023 - 8:00 pm EDT

FSN - Grandparent Family Support Group

Thu, 10/12/2023 - 8:00 pm EDT

FSN - Complex Communicators and Feeding Challenges Group for Parents/Caregivers

Mon, 10/16/2023 - 8:00 pm EDT

FSN - Grief Support for Parents/Caregivers who have lost someone with WS

Wed, 10/18/2023 - 8:00 pm EDT

FSN - Parents/Caregivers of Individuals with WS-Autism Dual Diagnosis

Thu, 10/19/2023 - 8:00 pm EDT

FSN - Only Child Family Support Group

Wed, 10/25/2023 - 8:00 pm EDT

A Night of Love, A Celebration of Life

Fri, 11/03/2023 - 6:30 pm EDT

Contact us

243 Broadway #9188

Newark, NJ 07104

info@williams-syndrome.org

248.244.2229
800.806.1871
248.244.2230 fax

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Inclusion statement

The WSA upholds the following positions on inclusion.  We believe that:

  • everyone benefits when individuals with WS are meaningfully included in educational, work, and community settings
  • individuals with WS should receive all necessary supports and services to fully participate in their family lives, communities, and society as a whole
  • high expectations should be the norm, and that individuals with WS and their families should decide how they best learn, work, and enjoy social settings
  • “inclusion” is not one-size-fits-all, and will look different for each family based on each individual’s desires and needs
  • inclusion creates a sense of belonging in society, meaningful relationships, and opportunities to achieve dreams

Funding priorities

Funding priorities pie chart.

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