Skip to main content
Williams Syndrome Association logo.
Donate
  • Join
  • Events
  • Shop
  • Español
  • Forums
  • About Us
    • Overview
    • Structure & Administration
      • Board of Trustees
      • Medical Advisors
      • Executive Director & Team
      • Consultants & Partners
    • Position Statements
    • Programs
    • Strategic Plan
    • Newsletters
    • Media & Press Center
  • Education
    • Overview
    • Getting Started in School
    • Creating an IEP
    • Creating a Vision Statement
    • Education Strategies
    • Testing & Evaluation Strategies
    • Therapeutic Strategies for Education
    • Transition Strategies - High School to Adult Life
    • Life Skills & Post Secondary Programs
    • Featured Education Resources
    • Virtual Education Resources
    • Convention
    • Resources
  • Medical
    • Overview
    • Diagnosing Williams Syndrome
    • Healthcare Guidelines
    • Anesthesia Concerns
    • Cardiovascular Concerns
    • Gastrointestinal Concerns
    • Neurodevelopment & Behavioral Health
    • Williams Syndrome Clinics
    • Collaborative Registry for WS (CReWS)
    • renovascular hypertension collaborative
    • Resources
    • Research
      • Overview
      • Current Studies
      • Grant Opportunities
      • Renovascular Hypertension Collaborative
  • Life with WS
    • Overview
    • What is Williams syndrome?
      • Overview
      • General Information
      • Diagnosing WS
      • New Diagnosis: First Steps
      • Therapeutic Interventions
      • Talking to Children about WS
      • Frequently Asked Questions
    • Family Support
      • Overview
      • Family Support Network
      • Support Groups
      • Connect with Others
      • Available Aid and Assistance
      • Financial Planning
      • Grandparents
      • Siblings
      • Resource Organizations
      • International Organizations
    • Adult Life
      • Overview
      • Transition Strategies - High School to Adult Life
      • Life Skills & Post Secondary Programs
      • Housing
      • Employment
      • Adventure Seekers
    • Programs
      • Become a Member
      • Convention
      • Camps
      • Adventure Seekers
      • Financial Aid & Scholarships
      • Grant Opportunities
    • Media and Entertainment
      • The Starry-Eyed Podcast
      • WS In the News
      • Blog
    • Frequently Asked Questions
    • Attend an Event
    • Convention
    • Resources
  • Get Involved
    • Overview
    • Walks for Williams
    • Awareness Month
      • 2024 Awareness Month Social Media Toolkit!
    • Become a Member
    • Donate
    • Fundraise
    • Volunteer
    • Event Calendar
    • Host a Social/Connection Event
    • 2024 WSA Gift Guide
    • Share Your Story
    • Your Contributions at Work
    • Shop our Merch
    • Contact the WSA

You are here

Home » Make Connections » Connect with your Local Community

New York

The Williams Syndrome Association is organized into 19 regions across the United States. New York is split into three regions. The southeastern portion of the state is part of the NYC Metro region, the remaining eastern portion of New York is part of the New England region, and the western portion of the state is part of the Tri-State region. Each region works to provide resource information and social and educational opportunities to its members. Volunteers are standing by in each state within the regions (parents and grandparents who can provide resources and information) to speak with new families or any families needing support. They are joined by many other volunteers who work hard to facilitate gatherings such as picnics, conferences, and fundraisers. 

Below you will find the name(s) and contact email addresses of your state's Family Support Network volunteer(s).

Family Support Volunteer:
Nora Beger of Williamsville, New York
Email

Area of focus: adults

Local Facebook Group:
Family Support Volunteer:
Melissa Felsher of New York, New York
Email

Area of focus: new diagnosis, children, teens.

Local Facebook Group:
Family Support Volunteer:
Judy Flamm of Ardsley, New York
Email

Area of focus: adults

Local Facebook Group:
Family Support Volunteer:
Tzira Lamm of Brooklyn, New York
Email

Area of focus: new diagnosis, children

Local Facebook Group:

Clinics in NY

Children's Hospital of Montefiore logo

Children's Hospital of Montefiore Center for Congenital Disorders

3415 Bainbridge Ave.
Bronx, New York 10467

Dr. Robert Marion, Director
Miranda Di Biase, Clinic Coordinator 718-741-2514
Website

Upcoming Events in NY

Anywhere, Anytime Virtual Fundraising Walk for Williams

Thu, 06/13/2024 - 12:00 am EDT to Sun, 12/01/2024 - 12:00 am EST

FSN - Parents/Caregivers of Children 4 and under with WS

Mon, 10/07/2024 - 8:00 pm EDT

FSN - Parents/Caregivers of Teens & Tweens with WS

Tue, 10/08/2024 - 8:00 pm EDT

FSN - Grandparent Family Support Group

Thu, 10/10/2024 - 8:00 pm EDT

FSN - Complex Communicators and Feeding Challenges Group for Parents/Caregivers

Mon, 10/14/2024 - 7:30 pm EDT

FSN - Families Exploring 'Think College' Programs

Mon, 10/14/2024 - 8:00 pm EDT

FSN - Parents/Caregivers of Adults with WS and Anxiety Meeting

Tue, 10/15/2024 - 8:00 pm EDT

FSN - Parents/Caregivers of Adults with WS and Challenging Behaviors Meeting

Wed, 10/16/2024 - 8:00 pm EDT

FSN - Parents/Caregivers of Individuals with WS-Autism Dual Diagnosis

Thu, 10/17/2024 - 8:00 pm EDT

FSN - Adult Siblings of Individuals with WS

Sun, 10/20/2024 - 8:00 pm EDT

FSN - Parents/Caregivers of Children (Under 18) with WS and Anxiety Meeting

Mon, 10/21/2024 - 8:00 pm EDT

NEW FSN GROUP: Craft & Convo for Parents/Caregivers

Mon, 10/21/2024 - 8:00 pm EDT

FSN - Navigating Transition from High School Support

Mon, 10/21/2024 - 8:00 pm EDT

Adventure Seekers Jamboree: Tuesday Shenanigans! Oct 22

Tue, 10/22/2024 - 4:00 pm EDT

Adventure Seekers Jamboree: Thursday Hullabaloo! Oct 24

Thu, 10/24/2024 - 7:00 pm EDT

FSN - Only Child Family Support Group

Thu, 10/24/2024 - 8:00 pm EDT

FSN - Complex Communicators and Feeding Challenges Group for Parents/Caregivers

Mon, 11/04/2024 - 7:30 pm EST

FSN - Complex Communicators and Feeding Challenges Group for Parents/Caregivers

Wed, 12/04/2024 - 8:00 pm EST

Contact us

243 Broadway Unit 9188
Newark, NJ 07104

info@williams-syndrome.org

248.244.2229
800.806.1871
248.244.2230 fax

Follow us

Position on Inclusion

The WSA upholds the following positions on inclusion. We believe that: 

  • everyone benefits when individuals with WS are meaningfully included in educational, work, and community settings 
  • individuals with WS should receive all necessary supports and services to fully participate in their family lives, communities, and society as a whole
  • high expectations should be the norm, and individuals with WS and their families should decide how they best learn, work, and enjoy social settings
  • “inclusion” is not one-size-fits-all, and will look different for each family based on each individual’s desires and needs
  • inclusion creates a sense of belonging in society, meaningful relationships, and opportunities to achieve dreams

Funding priorities

Funding priorities pie chart.

  • Privacy Policy
  • Disclaimer
  • Non-discrimination statement
  • dei statement
  • media & press center
  • 501(c)(3) organization
Copyright © 2024 Williams Syndrome Association | Web design
2024 WSA Convention session videos now available!

Get access to all of the educational sessions from the 2024 Convention in Phoenix!

Learn more!