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Home » Make Connections » Connect with your Local Community

Virginia

The Williams Syndrome Association is organized into 19 regions across the United States. Virginia is part of the Mid-Atlantic region. Each region works to provide resource information and social and educational opportunities to its members. Volunteers are standing by in each state within the regions (parents and grandparents who can provide resources and information) to speak with new families or any families needing support. They are joined by many other volunteers who work hard to facilitate gatherings such as picnics, conferences, and fundraisers. 

Below you will find the name(s) and contact email addresses of your state's Family Support Network volunteer(s).

Family Support Volunteer:
Anne Marie Irani of Richmond, Virginia
Email

Areas of focus: adults, employment

Local Facebook Group:
Family Support Specialist:
Jess Iverson of Falls Church, Virginia
Email

Areas of focus: new diagnosis, young children, social events

Local Facebook Group:

Upcoming Events in VA

FSN - Parents/Caregivers of Children 4 and under with WS

Tue, 08/05/2025 - 8:00 pm EDT

NEW! FSN - Parents/Caregivers Open Discussion Group

Wed, 08/06/2025 - 8:00 pm EDT

FSN - Grandparent Family Support Group

Thu, 08/07/2025 - 8:00 pm EDT

Wellness Wednesday Live! with Nick Doris

Wed, 08/13/2025 - 1:00 pm EDT

FSN - Grief Support for Parents/Caregivers who have lost someone with WS

Thu, 08/14/2025 - 8:00 pm EDT

FSN - Adult Siblings of Individuals with WS

Sun, 08/17/2025 - 8:00 pm EDT

FSN - Complex Communicators and Feeding Challenges Group for Parents/Caregivers

Mon, 08/18/2025 - 8:00 pm EDT

Adventure Seekers Jamboree - Tuesday Shenanigans!

Tue, 08/19/2025 - 4:00 pm EDT

FSN - Navigating Transition from High School Support

Tue, 08/19/2025 - 8:00 pm EDT

Adventure Seekers Jamboree - Thursday Hullabaloo!

Thu, 08/21/2025 - 7:00 pm EDT

FSN - Parents/Caregivers of Individuals with WS-Autism Dual Diagnosis

Thu, 08/21/2025 - 8:00 pm EDT

FSN - Craft & Convo for Parents/Caregivers

Mon, 08/25/2025 - 8:00 pm EDT

FSN - Parents/Caregivers of Adults with WS and Anxiety Meeting

Thu, 08/28/2025 - 8:00 pm EDT

Walk for Williams - Fredericksburg, VA

Sat, 09/06/2025 - 12:00 pm EDT to 09/06/2025 - 3:27 pm

Adventure Seekers Jamboree - Tuesday Shenanigans!

Tue, 09/16/2025 - 4:00 pm EDT

Adventure Seekers Jamboree - Thursday Hullabaloo!

Thu, 09/18/2025 - 7:00 pm EDT

Adventure Seekers Jamboree - Tuesday Shenanigans!

Tue, 10/21/2025 - 4:00 pm EDT

Adventure Seekers Jamboree - Thursday Hullabaloo!

Thu, 10/23/2025 - 7:00 pm EDT

Adventure Seekers Jamboree - Tuesday Shenanigans!

Tue, 11/18/2025 - 4:00 pm EST

Adventure Seekers Jamboree - Thursday Hullabaloo!

Thu, 11/20/2025 - 7:00 pm EST

Adventure Seekers Jamboree - Tuesday Shenanigans!

Tue, 12/16/2025 - 4:00 pm EST

Adventure Seekers Jamboree - Thursday Hullabaloo!

Thu, 12/18/2025 - 7:00 pm EST

Dream Team Saturdays - For Adventure Seekers 38+

Sat, 12/27/2025 - 2:00 pm EST

Contact us

243 Broadway Unit 9188
Newark, NJ 07104

info@williams-syndrome.org

248.244.2229
800.806.1871
248.244.2230 fax

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Position on Inclusion

The WSA upholds the following positions on inclusion. We believe that: 

  • everyone benefits when individuals with WS are meaningfully included in educational, work, and community settings 
  • individuals with WS should receive all necessary supports and services to fully participate in their family lives, communities, and society as a whole
  • high expectations should be the norm, and individuals with WS and their families should decide how they best learn, work, and enjoy social settings
  • “inclusion” is not one-size-fits-all, and will look different for each family based on each individual’s desires and needs
  • inclusion creates a sense of belonging in society, meaningful relationships, and opportunities to achieve dreams

Funding priorities

Funding priorities pie chart.

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