The WSA lost a very special friend and volunteer this month with the passing of Barbara Scheiber.  Barbara and her husband Walter first found the WSA in 1994, when they watched the 60 Minutes special on Williams syndrome and realized that their 36-year-old son, Robert, had nearly every characteristic mentioned. A phone call to Terry at the national office the day after the show began what would be more than 20 years of very special support to the WSA.

The diagnosis of Williams syndrome presents challenges for every individual and his or her family. Williams syndrome is a spectrum disorder. There is a great deal of variability in individuals throughout the spectrum. Medical concerns and learning challenges, emotional issues, and anxiety are common and can be all-consuming at times. The severity of the challenges varies and can ebb and flow over the years.