The WSA lost a very special friend and volunteer this month with the passing of Barbara Scheiber. Barbara and her husband Walter first found the WSA in 1994, when they watched the 60 Minutes special on Williams syndrome and realized that their 36-year-old son, Robert, had nearly every characteristic mentioned. A phone call to Terry at the national office the day after the show began what would be more than 20 years of very special support to the WSA.
Terry MonkabaThere's still time to participate in this survey about the healthcare transition for adults with Williams syndrome. By providing your input, you contribute to early research that can impact the quality of care received in the future! This online survey is intended for caregivers of an adult (18+) with Williams syndrome.
If you previously began taking the survey but still need to complete it, you still have time to finish it! The survey is available until October 19th.