When Ben was diagnosed with Williams syndrome 27 years ago, Gary and I were alone in Ben’s hospital room. There were no family close by, there was no internet to consult. We were provided with a 20+ year old medical paper, and the news that our lives and that of our 6 week old son
There's still time to participate in this survey about the healthcare transition for adults with Williams syndrome. By providing your input, you contribute to early research that can impact the quality of care received in the future! This online survey is intended for caregivers of an adult (18+) with Williams syndrome.
If you previously began taking the survey but still need to complete it, you still have time to finish it! The survey is available until October 19th.