Williams Syndrome (WS) affects an estimated 20,000 to 30,000 people in the United States. Families of affected individuals encounter major struggles. Many babies have life-threatening cardiovascular problems.
There's still time to participate in this survey about the healthcare transition for adults with Williams syndrome. By providing your input, you contribute to early research that can impact the quality of care received in the future! This online survey is intended for caregivers of an adult (18+) with Williams syndrome.
If you previously began taking the survey but still need to complete it, you still have time to finish it! The survey is available until October 19th.