The WSA is beginning an in-depth strategic planning process that will help shape our work into 2027 and beyond. The starting point is simple: we want to listen. We want to hear directly from you about what matters most, what is working well, and where you see opportunities for the WSA to grow.
We want to hear from all of you, and we’ve created different ways to provide feedback based on who you are. You’ll find separate instructions below for:
- Parents, caregivers, siblings, and others who play an important role in the life of someone with Williams syndrome
- Adults with Williams syndrome (18+)
Two ways to share your voice will be offered for each group.
Share Your Voice Through a Survey
The survey asks about your experiences, your priorities, and what you hope to see from the WSA going forward. The survey should take approximately 10–15 minutes to complete, depending on how much you choose to share.
Your individual responses will be kept confidential. If you choose to provide your contact information, the WSA may follow up with you directly.
The cutoff for the surveys is Sunday, October 11th.
Join a Town Hall Conversation
Prefer to share your thoughts in conversation? Join us for a small group Town Hall this fall. Each session will be limited to 50 participants, with breakout rooms to help ensure everyone has an opportunity to be heard.
We’ll add more dates if these fill up. You must register to attend the session. Please register for only one date to allow as many people as possible to participate.
Adults With Williams Syndrome (18+)
Complete a survey
If you need assistance completing the survey, you may ask a parent, caregiver, or support person to help you. We want to hear YOUR thoughts and opinions, not what someone else thinks you should say.
There are no right or wrong answers. You can skip any question, and you can stop at any time.
Tell us about your life, what matters to you, and how the WSA can better support you.
Join us for a discussion on Zoom
If you’d like to share your thoughts live on Zoom, please select one of the dates below. Please do not attend both meetings. There are limited spaces available, so we want to ensure as many people as possible can attend. You must register ahead of time to attend the discussion.
- Town Hall #1: Sunday, October 25 at 8:00 PM ET.
- Town Hall #2: Thursday, October 29 at 8:00 PM ET.
Parents, Caregivers, Siblings & Others Who Support Someone With Williams Syndrome
Complete a survey
Once again, your individual responses will be kept confidential. If you choose to provide your contact information, the WSA may follow up with you directly.
Join us for a discussion on Zoom
If you’d like to share your thoughts live on Zoom, please select one of the dates below. Please do not attend both meetings. There are limited spaces available, so we want to ensure as many people as possible can attend. You must register ahead of time to attend the discussion.
- Town Hall #1: Wednesday, October 21 at 8:00 PM ET.
- Town Hall #2: Sunday, November 1 at 8:00 PM ET.
In the months ahead, we’ll share what we learn from this process and how your feedback is helping shape the WSA’s future. Your voice matters, and we hope you’ll take a few minutes to share your thoughts.
Thank you for being part of this process, and for being part of the WSA community!
La WSA está iniciando un proceso de planificación estratégica en profundidad que nos ayudará a definir nuestra labor de aquí a 2027 y más allá. El primer paso es sencillo: queremos escuchar. Queremos que nos cuentes directamente qué es lo que más importa, qué está funcionando bien y dónde ves oportunidades de crecimiento para la WSA.Comparte tu opinión a través de una encuesta: La encuesta te pregunta sobre tus experiencias, tus prioridades y lo que esperas de la WSA en el futuro. Completar la encuesta te tomará aproximadamente entre 10 y 15 minutos, dependiendo de cuánta información decidas compartir. Tus respuestas individuales se mantendrán confidenciales. Si decides proporcionar tu información de contacto, la WSA podría ponerse en contacto contigo directamente. La fecha límite para completar la encuesta es el domingo 11 de octubre.Debajo encontrarás la información que necesitas para participar.Adultos con síndrome de Williams (mayores de 18 años)
- Haz clic en el botón de abajo para completar tu encuesta.
- Si necesitas ayuda para completar la encuesta, puedes pedirle a uno de tus papás, a tu cuidador o a alguien de apoyo que te ayude.
- Queremos conocer TUS pensamientos y opiniones, no lo que otra persona cree que deberías decir.
- No hay respuestas correctas ni incorrectas. Puedes saltarte cualquier pregunta y puedes detener la encuesta en cualquier momento.
- Cuéntanos sobre tu vida, lo que te importa y cómo la WSA puede apoyarte mejor.
Padres, cuidadores, hermanos y otras personas que apoyan a alguien con síndrome de Williams
Haz clic en el botón de abajo para completar tu encuesta.