Williams Syndrome Clinics

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Williams syndrome clinics are "specialty" clinics often located in children's hospitals.  They are established to provide a place where parent's can bring their children to see specialists with an excellent knowledge of Williams syndrome.  It is not essential to bring your child to a WS clinic but it can be very helpful. 

WS clinics can provide medical evaluations by several different specialists during a single 1 - 2 day visit, as well as evaluations by therapists that can often be used to help access services for your child locally.There are several Williams syndrome clinics around the United States.  Clinic offerings vary.  It's important to call and find out exactly what services the clinic nearest you can provide.

If you can, get a referral from your physician to the clinic you would like to visit. This will help you obtain insurance coverage for the visit.

The current Williams syndrome clinics are:

Arkansas Massachusetts New York
The Multidisciplinary Connective Tissue Clinic at Arkansas Children's Hospital
1 Children's Way, Mail Slot 512-3
Arkansas Children's Hospital
Little Rock, AR 72202
Director: R. Thomas Collins, II, MD
Clinic Coordinator: Beth Martin, RN
Appointments: (501) 364-2088
Mass General Hospital
55 Fruit St.
Boston, MA 02114
Dr. Barbara Pober
Sandy (617) 726-1561
Children's Hospital of Buffalo
219 Bryant St.
Buffalo, NY 14222
Dr. Laurie Sadler
(716) 878-7530
Florida    

All Children’s Hospital
Johns Hopkins Medicine

501 6th Avenue South
St. Petersburg, FL 33701

Heather Wilson
727-767-6898
heather.wilson@allkids.org

Helping Children with Challenges
21 Worthen Road, Suite 2
Lexington, MA 02421
Dr. Karen Levine
(781) 799-4348
karen@DrKarenLevine.com
website
Children's Hospital of Montifiore
Center for Congenital Disorders

3415 Bainbridge Ave.
Bronx, NY 10467
Dr. Robert Marion
(718) 741-2323
Pennsylvania   Utah
Children's Hospital of Philadelphia
34th St. & Civic Center Blvd.
Philadelphia, PA 19104
Daria Tolentino (215) 590-3376
(After call is connected, you will choose option #3, then option #2)
The Children's Hospital, Boston
300 Longwood Ave.
Boston, MA 02115
Liz Bain (617) 355-5429
Primary Children's Medical Center
Adult Congenital Heart Disease Clinic

100 North Mario Capecchi Dr.
Salt Lake City, UT 84113
Angela Yetman, MD
Nancy M. Veit (801) 662-5462
CARDIOLOGY ONLY
Ohio   Missouri
Nationwide Children's Hospital
Nisonger Center

McCampbell Hall
1581 Dodd Drive
Columbus, OH 43210
Dr. Marilee Martens

To make an appointment for the WS Clinic, please contact Andrea Subler, MSW, LSW, in Developmental and Behavioral Pediatrics at Nationwide Children's Hospital at: (614) 722-4050.

 

St. Louis Children's Hospital
Williams Syndrome Center

One Children's Place
St. Louis, MO 63110
Director: Beth Kozel, MD
(314) 454-6093 (
choice 2 after the prompt)
website
 

For additional questions about Williams syndrome clinics, please contact the WSA office here.