Williams Syndrome Clinics

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Williams syndrome clinics are "specialty" clinics often located in children's hospitals.  They are established to provide a place where parent's can bring their children to see specialists with an excellent knowledge of Williams syndrome.  It is not essential to bring your child to a WS clinic but it can be very helpful. 

WS clinics can provide medical evaluations by several different specialists during a single 1 - 2 day visit, as well as evaluations by therapists that can often be used to help access services for your child locally.There are several Williams syndrome clinics around the United States.  Clinic offerings vary.  It's important to call and find out exactly what services the clinic nearest you can provide.

If you can, get a referral from your physician to the clinic you would like to visit. This will help you obtain insurance coverage for the visit.

The current Williams syndrome clinics are:

Boston, MA
The Children's Hospital, Boston

    300 Longwood Ave. 
    Boston, MA 02115 
    Clinic Coordinator: Katie Scarpelli 
    (617) 355-5429

Massachusetts General Hospital

    Barbara Pober MD 
    55 Fruit St. 
    Boston, MA 
    Clinic Coordinator: Sandy 
    (617) 726-1561

 

Cincinnati, OH
Cincinnati Center for Development Disorders

    Elland & Bestheda Ave. 
    Cincinnati, OH 45229-2899 
    Dr. Renee Rodrigues 
    (513) 636-4611

 

Columbus, OH
Ohio State University Nisonger Center

    McCambell Hall 
    1581 Dodd Drive 
    Columbus, OH 43210 
    Dr. Marilee Martens 
    (614) 688-3112

 

Philadelphia, PA
Children's Hospital of Philadelphia

34th St. & Civic Center Blvd. 
Philadelphia, PA 19104 
Daria Tolentino 
(215) 590-3376 
After call is connected, select Option 3, then Option 2

 

San Diego, CA
San Diego Children's Hospital

    San Diego, CA 92113 
    (800) 434-1038

 

Bronx, NY
Children's Hospital at Montifiore
Center for Congenital Disorders

    3415 Bainbridge Ave 
    Bronx, NY 10467 
    Dr. Robert Marion 
    (718) 741-2323

 

Buffalo, NY
Children's Hospital of Buffalo

    219 Bryant St. 
    Buffalo, NY 14222 
    Dr. Laurie Sadler 
    (716) 878-7530

 

 

Salt Lake City, UT
Primary Children's Medical Center
Adult Congenital Heart Disease Clinic

100 North Mario Capecchi Drive 
Salt Lake City, UT 84113 
Angela Yetman, MD 
Contact: Nancy M. Veit, (801) 662-5462  Cardiology Services Only

For additional questions about Williams syndrome clinics, please contact the WSA office here.