Williams Syndrome Clinics
Williams syndrome clinics are "specialty" clinics often located in children's hospitals. They are established to provide a place where parent's can bring their children to see specialists with an excellent knowledge of Williams syndrome. It is not essential to bring your child to a WS clinic but it can be very helpful.
WS clinics can provide medical evaluations by several different specialists during a single 1 - 2 day visit, as well as evaluations by therapists that can often be used to help access services for your child locally.There are several Williams syndrome clinics around the United States. Clinic offerings vary. It's important to call and find out exactly what services the clinic nearest you can provide.
If you can, get a referral from your physician to the clinic you would like to visit. This will help you obtain insurance coverage for the visit.
The current Williams syndrome clinics are:
Boston, MA
The Children's Hospital, Boston
300 Longwood Ave.
Boston, MA 02115
Clinic Coordinator: Katie Scarpelli
(617) 355-5429
Massachusetts General Hospital
Barbara Pober MD
55 Fruit St.
Boston, MA
Clinic Coordinator: Sandy
(617) 726-1561
Cincinnati, OH
Cincinnati Center for Development Disorders
Elland & Bestheda Ave.
Cincinnati, OH 45229-2899
Dr. Renee Rodrigues
(513) 636-4611
Columbus, OH
Ohio State University Nisonger Center
McCambell Hall
1581 Dodd Drive
Columbus, OH 43210
Dr. Marilee Martens
(614) 688-3112
Philadelphia, PA
Children's Hospital of Philadelphia
34th St. & Civic Center Blvd.
Philadelphia, PA 19104
Daria Tolentino
(215) 590-3376
After call is connected, select Option 3, then Option 2
Bronx, NY
Children's Hospital at Montifiore
Center for Congenital Disorders
3415 Bainbridge Ave
Bronx, NY 10467
Dr. Robert Marion
(718) 741-2323
Buffalo, NY
Children's Hospital of Buffalo
219 Bryant St.
Buffalo, NY 14222
Dr. Laurie Sadler
(716) 878-7530
Salt Lake City, UT
Primary Children's Medical Center
Adult Congenital Heart Disease Clinic
100 North Mario Capecchi Drive
Salt Lake City, UT 84113
Angela Yetman, MD
Contact: Nancy M. Veit (801) 662-5462
Cardiology Services Only
For additional questions about Williams syndrome clinics, please contact the WSA office here.
