Your child has just been diagnosed with Williams syndrome - what do you do now?
There are several things you should do as soon as possible:
Address whatever physical disabilities/problems your child is having....
Learning that your child has a syndrome can be overwhelming. Accepting the news emotionally, dealing with immediate medical concerns, and preparing for ongoing development issues can make every day go by in a...
Nearly every individual with Williams syndrome will benefit from therapeutic intervention to help overcome developmental delays, joint problems, fine motor issues and other characteristics common to Williams syndrome...
An Individualized Education Program (IEP) as defined by the Individuals with Disabilities Education Act of 1997 (IDEA'97), is your child's roadmap through the public education system. The IEP is created...
When your child is diagnosed with Williams syndrome, you immediately become a member of a community of 20,000+ families in the United States, and countless others world wide. Closer to home, the communitiy of...
Williams syndrome clinics are "specialty" clinics often located in children's hospitals. They are established to provide a place where parent's can bring their children to see specialists with an...
Individuals with Williams syndrome benefit from many different types of therapeutic support. In addition to occupational, physical and speech therapy, children with Williams syndrome often particiate, and gain...
The diagnosis of Williams syndrome can have financial and resource implications for your family. Depending on your child's medical status and developmental stage there will be a need for interventions, and...
As the parent of a child with disabilities, one of your concerns will be to provide for the future for your child.
It is important to make sure that all assets are kept out of your disabled child's name (...
The programs of the Williams Syndrome Association are designed to support individuals with Williams syndrome, their parents, and the professionals working with our children.
Programs are provided at both the...
The Williams Syndrome Association works with volunteers around the country to provide 1-2 day educational conferences for families and local professionals. The conferences bring families together locally for...
MSNBC
Super-social gene may hold clues to autism, other disorders
Those with Williams syndrome have a distinctive pattern of intellectual peaks and valleys, including low IQs, developmental delays and learning...
The WSA eNewsletter is a bi-monthly electronic supplement to Heart to Heart.
The eNewsletter is distributed electronically to all WSA members and contains program highlights and event updates.
You can view the...
Webcasts will be held bi-monthly and topics will alternate between medical, educational, and other issues. If you would like to suggest a topic for a future webcast, please send your ideas via email to ...
Moments in Time: Parents write about special moments in the lives of their children with Williams syndrome
One thing that parents, and other family members need when they find out their child has Williams syndrome...
Each summer more than 200 youth and young adults with Williams syndrome enjoy 1 or more camp weeks designed especially for them, at WSA sponsored camps. The camps keep them busy and happy with many different activities...
The Williams Syndrome Association has established a medical treatment assistance fund to help individuals with Williams syndrome receive the best possible care.
The WSA offers financial support to help families cover...
Heart to Heart is published 3 to 4 times each year by the WSA. It contains the latest information on medical treatments and educational strategies written by professionals working with individuals with Williams...
