Heart to Heart is the WSA's quarterly membership newsletter. It contains many excellent articles written by professionals working with individuals with Williams syndrome, or published by the WSA itself in association with medical and professional advisors.
Reprints of the following articles are available from the WSA and can be ordered using our printed order form, or through the eStore.
If using the printed order form, please print this page and circle the articles you are ordering.
Article list
MEDICAL GENETICS/RESEARCH
EDUCATION
MUSIC EDUCATION
INFANTS AND YOUNG CHILDREN EDUCATION
SCHOOL AGE CHILDREN
TEENS AND ADULTS
RELEVANT TO ALL AGES
Research Notes from the Salk Institute for Biological Studies, Laboratory for Cognitive Neuroscience [back to top]
by: The Salk Institute for Biological Studies, Laboratory for Cognitive Neuroscience
Heart to Heart issue: Dec. 1997 Vol. 14 #3
Summary: An update of research at the Salk Institute, including studies of brain imaging, WS database and musical abilities in individuals with Williams Syndrome.
Latest information on the WS critical area on Chromosome #7 from the research lab of Dr. Lap-Chee Tsui in Ontario, Canada [back to top]
by: Steven Scherer, Ph.D.
Heart to Heart issue: Dec. 1997 Vol. 14 #3
Summary: Dr. Tsui's group is among those working to identify the genes missing on chromosome #7 in WS individuals. 20 have been identified to date and they feel there are more.
Genetics and Williams Syndrome [back to top]
by: Kay Metcalf
Heart to Heart issue: May 1998 Vol. 15 #1
Summary: Basic review of human genetics and explanation of genetic deletion in WS
Patches and Parts: A new approach to an old problem [back to top]
by: James H. Myers
Heart to Heart issue: Dec. 1998 Vol. 15 #3
Summary: Touches on a variety of devices that have changed and broadened treatment possibilities for individuals with heart defects.
The Preanesthetic Assessment of the Individual with Williams Syndrome [back to top]
by: Dr. Lynn White
Heart to Heart issue: Dec. 1998 Vol. 15 #3
Summary: Written by the parent of a child with WS who is also an anesthesiologist. Guidelines for assessment of individuals with WS prior to undergoing anesthesia.
by: Nancy Grejtak
Heart to Heart issue: Dec. 1997 Vol. 14 #3
Summary: Tips and resources to aid in handwriting and reading mastery for students with WS.
How to Develop an IEP that Works [back to top]
by: Maria Kerber
Heart to Heart issue: May 1998 Vol. 15 #1
Summary: Questions to consider in developing an IEP.
The Parents Role in Developing the IEP [back to top]
by: Ronald Hager, Neighborhood Legal Services
Heart to Heart issue: May 1998 Vol. 15 #1
Summary: An outline of a parent's role and rights in the development of their child's IEP.
Special Education- Nine Rules of Thumb [back to top]
by: Robert Crabtree
Heart to Heart issue: Dec. 1998 Vol. 15 #3
Summary: Reprinted from Newsline: The Federation for Children with Special Needs A nine step guide for parents to advocate successfully for their special needs children in order to obtain educational and related services.
Research Update: Musical Abilities in Individuals with Williams Syndrome [back to top]
by: Daniel Levitan and Ursula Bellugi
Heart to Heart issue: Dec. 1997 Vol. 14 #3
Summary: A preliminary study of individuals with WS and musical ability, carried out at the Belvoir Terrace Music Camp in August, 1996
Music Therapy and Adapted Music Lessons [back to top]
by: Kathleen Coleman, Prelude Music Therapy
Heart to Heart issue: Dec. 1998, Vol. 15 #3
Summary: Briefly explains music therapy and adapted music lessons. A handout published by Prelude Music Therapy.
Floor Time: Intervention for Young Children with PDD: The Approach of Greenspan, NM and Serena Weider, Ph,D. [back to top]
by: Karen Levine Ph.D. and Rob Wharton MD.
Heart to Heart issue: May 1998 Vol. 15 #1
Summary: An overview of Dr. Greenspan's intensive approach to intervention. The authors have used "Floor Time" successfully with autistic children and are now using it in their work with children who have WS.
Learned Helplessness and School Failure [back to top]
by: Robert and Myrna Gordon
Heart to Heart issue: Dec. 1997 Vol. 14 #3
Summary: An explanation of learned failure as well as strategies to avoid this pitfall.
Record Keeping: A Sub-Specialty in Parenting Children with Special Needs [back to top]
by: Maria Kerber and Julie Siebold, Parent Network, Buffalo, NY
Heart to Heart issue: May 1998 Vol. 15 #1
Summary: Outlines tips on organizing school related paperwork effectively.
by: Kathryn Kerpestein
Heart to Heart issue: Dec. 1998 Vol. 15 #3
Summary: A brief discussion of nonverbal communication and interpretation of nonverbal messages. Includes reference to a book on the subject "Helping the Chid Who Does Not Fit In" by Drs. Stephen Nowicki and Marshall P. Duke
by: Bill Hughes
Heart to Heart issue: Dec. 1997 Vol. 14 #3
Summary: Comments about independent living arrangements for adults with WS and an invitation to share experiences and ideas in the Teen- Adult Concerns column.
Excess Weight: A Threat to Adults with WS [back to top]
by: Howard Lenhoff Ph.D.
Heart to Heart issue: Dec. 1997 Vol. 14 #3
Summary: Observations of weight-related issues in adults with WS and a chronicle of Howard's daughter Gloria and her impressive weight control regime.
by: Jill Richards
Heart to Heart issue: May, 1998 Vol. 15 #1
Summary: Outlines the process of transitioning individuals from the school system to community based living.
The Sibling Supports Project [back to top]
by: Children's Hospital and Regional Medical Center
Heart to Heart issue: May 1998 Vol. 15 #1
Summary: A description of the "Sib shop" program which is geared toward brothers and sisters of individuals (with special needs) and their issues.
Guardianship: A Complex Topic [back to top]
by: Gordon Biescar
Heart to Heart issue: May 1998 Vol. 15 #1
Summary: A brief explanation of the legalities of Guardianship.
by: Curtis Shaidett
Heart to Heart issue: May 1998 Vol. 15 #1
Summary: An explanation of this unique form of trust for individuals with special needs. It allows for additional support without compromising eligibility for State or Federal aid.
Anxiety in Individuals with Williams Syndrome; Model and Strategies [back to top]
by: Karen Levine Ph.D., Robert H. Wharton, MD., and Sara Miranda LICSW
Heart to Heart issue: Vol. 16 #1 March 1999
Summary: Anxieties in individuals with WS and several interventions are outlined
