There are many resources on the internet that contain useful information relevant to Williams syndrome or related topics.
Hundreds of sites contain information pertinent to individuals with Williams syndrome. While we cannot list every site, the list provided here is a good starting point for further research in the appropriate areas.
NOTE: Sites that have direct relevance to the treatment or support of individuals with Williams syndrome were referenced in the appropriate places throughout our website and are not duplicated here.
Sites are categorized as:
Other US Williams syndrome organizations [back to top]
- Berkshire Hills Music Academy
The BHMA is a post-secondary/transition program established to provide comprehensive training in music, essential academics, social, vocational, and independent living skills. Find information on the BHMA here.
Support and advocacy organizations and resources [back to top]
- The ARC (Association for Retarded Citizens)
The Arc is the national organization of and for people with mental retardation and related developmental disabilities and their families.
- American Music Therapy Association
The mission of the American Music Therapy Association is to advance public awareness of the benefits of music therapy and increase access to quality music therapy services in a rapidly changing world.
- Wright's Law
Parents, advocates, educators, and attorneys come to Wrightslaw for accurate, up-to-date information about advocacy for children with disabilities.
- The National Organization for Rare Disorders - NORD
NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
- Genetic/Rare conditions - national resources
Organizations, support groups and information on genetic and rare conditions.
- Family Village Home Page
This site also contains a Williams syndrome discussion board. Go to the discussion board here.
Special educational organizations and resources [back to top]
- US Department of Education - My Child's Special Needs
The US Department of Education (My Child's Special Needs section) provides links to Guides to the IEP Program, Family & Advocates Partnership for Education, Disability Discrimination information, and much more.
- US DoE - Office of Special Education and Rehabilitative Services
The Office of Special Education and Rehabilitative Services (OSERS) is committed to improving results and outcomes for people with disabilities of all ages.
- TASH - Equity, Diversity, Social Justice and Inclusion
TASH is an international association of people with disabilities, their family members, other advocates, and professionals fighting for a society in which inclusion of all people in all aspects of society is the norm.
- Family and Advocates Partnership (FAPE)
The FAPE project is a partnership that aims to improve the educational outcomes for children with disabilities.
- Council for Exceptional Children
The Council for Exceptional Children (CEC) is the largest international professional organization dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities, and/or the gifted.
- Institute of Community Integration
Working to improve the community services and social supports available to individuals with developmental and other disabilities, and their families.
- Learning Disabilities Association
The Learning Disabilities Association of America is a national, non-profit organization committed to advancing the education and general welfare of children and adults of normal or potentially normal intelligence who manifest disabilities of a perceptual, conceptual, or coordinative nature.
- Learning Disabilities Online
LD Online is a service of The Learning Project at WETA, Washington, D.C., in association with The Coordinated Campaign for Learning Disabilities.
- Berkshire Hills Music Academy
The BHMA is a post-secondary/transition program established to provide comprehensive training in music, essential academics, social, vocational, and independent living skills. Find information on the BHMA here.
- Inclusion Press
International Williams syndrome organizations [back to top]
Argentina
Australia
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Williams Syndrome Association of South Australia Inc.
PO Box 247
Salisbury SA 5108
Australia
Tel: 08 8258 3867
Email: amarob@chariot.net.au
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Williams Syndrome (IHC) Association of New South Wales
32 Selwyn Street
Paddington
New South Wales 2021
Australia
Tel: 02 9332 1361
Belgium
Brazil
Canada
Denmark
-
Williams Syndrome Association of Denmark
V/gitte Petgersen Kildemarken 44
4622 Havdrup
Denmark
Finland
France
-
ASW Ile de France (Paris and suburb)
BP 50
78362 MONTESSON CEDEX
Tel: +33 (0) 1 39 52 06 75
-
ASW Normandie
209 Rue du Commandant Abadie
76600 LA HAVRE
Tel: +33 (0)2 35 45 71 28
-
ASW Sud-Est (covering Lyon-Tolouse-Nice)
16, rue Teresa Maxence Chaix
13200 Aries
France
Tel: 04 90 85 18 99
Email: helene.monti@wanadoo.fr
Germany
Hungary
-
Hernad u 27
H-1078 Budapest
Hungary
Email: pogany@korb1.sote.hu
Tel: 36 1 326 7492 (English/French speaking)
Tel: 36 1 266 1639/2890 (English/Spanish speaking)
Ireland
Israel
-
Williams Syndrome of Israel
Louis Pasteur 5
Tel Aviv
Jaffo
68036
Israel
Tel: 03683 0538
Italy
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Assocociazione Italiana Sindrome di Williams
c/o Sovrano Militare Ordine di Malta
Piazza dei Cavalieri di Malta 4
00153 Roma
Italy
Tel/Fax: 06.574.1342
Email: aisw.rm@mclink.it
Japan
Netherlands
New Zealand
Norway
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Norsk Forening for WS
Lisen Julie Mohr Norsk Forening for WS Bernhard Herresvel 17
0376 Oslo
Norway
Email: lisen.mohr@frambu.no
Portugal
Slovac Republic
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Spolocnost Williamsovho Sydrom
MUDr. Vladimir Bzduch
I.detska klinika DRNsPLimbova c.1
833 40 bRATISLAVA-Kramare
Slovenska Republika
Email: v.bzduch@pobox.sk
South Africa
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The WSASA
Contact: Mike Kabat
P O Box 24003
Claremont 7735
Republic of South Africa
E-mail: kingscol@mweb.co.za
Spain
-
Asociación Síndrome Williams A.S.W.
C/Las Fabricas 3
Poligono Industrial Urtinsa
CP 28925 Alcorcon
Madrid
Spain
Tel: 91 486 0172
Fax: 91 556 7780
Email: elegary@teleline.es
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Asociación Síndrome de Williams en Soria
C/Sagunto 14 - 4B
42001 Soria
Spain
Tel: 975 22 2167
Fax: 975 22 5929
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Asociación Valenciana Síndrome de Williams
Plaza Alqueria Nova, 18, 49a,
46014 Valencia
Spain
Tel: +34 963 83 3547
Email: avsw@wanadoo.es
Sweden
Switzerland
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Sous La Rochetta
1566 St Aubin/Fr
Switzerland
Tel: (26) 677 17 17
Email: meroni@bluewin.ch
United Kingdom
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