WSA Structure And Administration

The Williams Syndrome Assocation is people: individuals with Williams syndrome their families, and interested medical professionals and educators.

Founded by a handful of families in San Diego, CA, the WSA is a volunteer driven 501(c)(3) non-profit organization divided into 16 regions across the US and Puerto Rico. Each region works to provide social and educational opportunities for its members. The WSA also has affiliation with similar international groups.

The WSA has supported nearly 5000 families of individuals with WS since its inception.

The WSA is administered at four levels:

Board of Trustees 

The Williams Syndrome Association is governed by a volunteer Board of Trustees. Trustees are elected by the membership for 3 year terms, and may seek re-election. The Board establishes the direction of the association and works closely with the Executive Director and regional volunteers to carry out its goals.

          Current Board Officers:
          Anthony Vecchia; Queens Village, NY 
         Vice President 
         Carlos Camarillo; San Antonio, TX 

          Aine Smalley, Santa Rosa, CA

Jeffrey Baer, CPA; Jackson, MO

          Board Members at Large:
Doug Betz; Bellbrook, OH
Melissa Felsher; New York, NY
Brett Glaser; Madison, CT

Ronald Janowczyk, Colleyville, TX
Karen Levine, Ph.D.; Bedford, MA
Sandy Miller; Simi Valley, CA

Catherine Norlin, Highland Park, IL
Dean Packard; Chevy Chase, MD
Carol Patinkin, MSW; Wilmette, IL
Michelle Self, Ph.D.; Perrysburg, OH
For complete contact information for the Board members, please contact the WSA National Office.
Professional Advisory Board
Ursula Bellugi, Ed.D.
R. Thomas Collins, II, M.D.
Albert Galaburda, M.D.
Paige Kaplan, M.D.
Ronald Lacro, M.D.
Martin Levinson, M.D.
Daniel Levitin, Ph.D.
Carolyn Mervis, Ph.D.
Colleen A. Morris, M.D.
Barbara R. Pober, M.D.
Abraham Rothman, M.D.
Paul Wang, M.D.
Patricia Webster, OTR
Lynn White, M.D.

Executive Director and Compensated Staff 

The Williams Syndrome Association has a staff of 5 full-time employees.  Led by the Executive Director, the staff handles all daily administration tasks, actively seeks funding sources for WSA programs, and carries out the vision of the Board of Trustees.  The Executive Director is also the primary spokesperson for the Association. 

Executive Director:  Terry Monkaba 
Communications Manager:  Mike McFall
Office Manager:  Anne Tipton
Volunteer & Event Coordinator: Jennifer O'Byrne
Program Administrator & Bookkeeper: Jessica Cummins
For complete contact information, please contact the WSA National Office.

Regional Chairs (and co-chairs) 

The WSA is divided into sixteen regional areas across the US. Each region is directed by one or more volunteer regional chairs and several area representatives who provide local information and support to families. 

All Regional Chairpeople and their contact information are listed in the WS Local Community section.