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Local resources
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Local organizations and professionals familiar with Williams syndrome and related issues are important resources. To be listed here, service providers must be recommended by other families of individuals with Williams syndrome. These professionals either have direct expertise with Williams syndrome, or have provided excellent service to people with WS in the course of their standard practice. In addition to direct service providers, it is important to have the right information for your locale since most organizations, agencies and regulations are administered at a local level. Many national organziations also have local offices and/or contacts in your area. Having local contacts for information can make your search for support much easier. These local resources are listed here under the following headings.
If the services you are looking for, or the location you are residing in, are not listed here, please contact your Regional Co-Chair in person for further assistance.
DIRECT SERVICE PROVIDERS [back to top]WASHINGTONBoyer Children's Clinic Boyer Children’s Clinic is a non-profit therapy and early childhood educational facility under the medical direction of a developmental pediatrician, serving children from birth to ten years who have neuromuscular disorders such as cerebral palsy or delay in development.
1850 Boyer Avenue East Seattle, WA 98112 Tel: (206) 325-8477 Web: www.boyer.org Helping infants and children with special needs.
16120 N.E. eighth Street Bellevue, WA 98008 Tel: (425) 747-4004 Web: www.kindering.org
SPECIALISTS [back to top]WASHINGTONGeneTests GeneTests is funded by a contract with the National Institutes of Health. By providing current, authoritative information on genetic testing and its use in diagnosis, management, and genetic counseling, GeneTests promotes the appropriate use of genetic services in patient care and personal decision making.
9725 Third Avenue NE Suite 602 Seattle, WA 98115 Web: www.genestest.org
LEGAL AND ADVOCACY SERVICES [back to top]NATIONALAmerican Association of People with Disabilities AAPD is the largest national nonprofit cross-disability member organization in the United States, dedicated to ensuring economic self-sufficiency and political empowerment for the more than 50 million Americans with disabilities.
1629 K Street NW, Suite 503 Washington, DC 20006 Tel: (800) 840-8844 Web: www.aapd-dc.org/index.php The National Institute on Disability and Rehabilitation Research has established a network of 10 regional Disability and Business Technical Assistance Centers. The DBTACs form a comprehensive national network for the provision of information and referrals, technical assistance, public awareness and training on all aspects of the American with Disabilities Act.
Western Washington University 6912 220th Street SW, #105 Mountlake Terrace, WA 98043 Tel: (425) 248-2480 Web: www.dbtacnorthwest.org An independent, nonprofit, §501(c)(3) tax-exempt organization of attorneys, advocates and parents. Our primary mission is to secure high quality educational services for children with disabilities.
P.O. Box 6767 Towson, Maryland 21285 Tel: (443) 451-5270 Web: www.copaa.net A national, grassroots clearinghouse for information and education concerning the health care of children with special health needs.
2340 Alamo SE, Suite 102 Albuquerque, NM 87106 Tel: (888) 835-5669 Web: www.familyvoices.org TheArcLink is the first web site to provide customized, specific information on the various sources of assistance available to individuals with disabilities and their families on a state-by-state basis as well as information on almost 30,000 providers.
320 West Eighth Street, Suite 126 Bloomington, IN 47404-3747 Tel: (877) 431-8532 Web: www.thearclink.org Parents, educators, advocates, and attorneys come to Wrightslaw for accurate, reliable information about special education law, education law, and advocacy for children with disabilities.
Web: http://www.wrightslaw.com The Arc of Washington State The Arc provides advocacy for people with developmental disabilities and their families.
2600 Martin Way East, Suite B Olympia, WA 98506 Tel: (888) 754-8798 Web: www.arcwa.org The Arc provides advocacy for people with developmental disabilities and their families.
233 6th Avenue North Seattle, WA 98109 Tel: (877) 964-0600 Web: www.arcofkingcounty.org The Spokane County Parent Coalition is an organization designed to provide information and resources to families who have sons/daughters with developmental disabilities.
127 West Boone Avenue Spokane, WA 99201 Tel: (509) 328-6326 Web: www.spokaneparentcoalition.org A private non-profit organization that protects the rights of people with disabilities statewide.
315 Fifth Avenue South, Suite 850 Seattle, WA 98104 Tel: (206) 324-1521 Tel: (800) 562-2702 Web: www.wpas-rights.org
FINANCIAL ASSISTANCE [back to top]This information is currently being compiled.
SUPPORT GROUPS/ORGANIZATIONS [back to top]NATIONALExceptional Parent Magazine EP’s on-line resource. Providing information, support, ideas, encouragement and outreach for parents and families of children with disabilities, and the professionals who work with them.
65 East Route 4 River Edge, NJ 07661 Tel: (201) 489-4111 Web: www.exceptionalparent.com A family resource center serving parents and children with special needs.
3041 Olcott Street Santa Clara, CA 95054 Tel: (408) 727-5775 Web: www.php.com The Sibling Support Project is a national effort dedicated to the life-long concerns of brothers and sisters of people who have special health, developmental, or mental health concerns.
A Kindering Center Program 6512 23rd Ave NW, #213 Seattle, WA 98117 Tel: (206) 297-6368 Web: www.siblingsupport.org Center for Children with Special Needs Children's Hospital and Regional Medical Center Information and resources for parents and professionals who advocate and care for children with special health care needs.
Children's Hospital and Regional Medical Center 155 N.E. 100th Seattle, WA 98125 Tel: (206) 987-5735 Web: www.cshcn.org An ongoing gathering and information exchange for parents and caregivers of individuals with special needs. Sibshops Children's Hospital and Regional Medical Center Children's Sibshops for siblings of children with special health and developmental needs.
Children's Hospital and Regional Medical Center 155 N.E. 100th Seattle, WA 98125 Tel: (206) 987-3285 Web: www.seattlechildrens.org/child_health_safety/classes_events/sibshops.asp To improve the quality of life for people with disabilities by providing opportunities to participate in year-round outdoor recreational activities through education and training.
1621 114th Avenue S.E., Suite 132 Bellevue, WA 98004-6905 Tel: (425) 462-0978 Web: www.skiforall.org Provide a year-round program of sports training and competition for children and adults with developmental disabilities.
2150 N. 107th Street, Suite 220 Seattle, WA 98133-9009 Tel: (800) 752-7559 Web: www.sowa.org A parent-directed organization, exists to increase independence, empowerment, and future opportunities for consumers with special needs, their families and communities, through training, information, referral and support.
6316 S. 12th Street Tacoma, WA 98465 Tel: (253) 565-2266 Tel: (800) 572-7368 Web: www.washingtonpave.org A network of 18 community-based, private, nonprofit child care resource and referral agencies across Washington State.
917 Pacific Avenue, Suite 600 Tacoma, WA 98402-4437 Tel: (800) 446-1114 Web: www.childarenet.org Their mission is to celebrate and support fathers and families raising children with special health care needs and developmental disabilities.
16120 N.E. 8th Street Bellevue, WA 98008-3937 Web: www.fathersnetwork.org The Coalition was formed in 1977 to bring parent and professional organizations together in a spirit of cooperation to share information, explore issues and effectively advocate for quality education for all children, particularily those with special needs in Washington State.
STATE/LOCAL SOCIAL SERVICES AGENCIES [back to top]WASHINGTONSeattle Human Services Department Seattle’s FLASH (Fun Leisure Access Savings and Health) Card Seattle’s FLASH Card — Fun Leisure Access Savings and Health — is a discount and identification card for adults with disabilities.
700 5th Avenue, Suite 5800 Seattle, WA 98124 Tel: (206) 386-1001 Web: www.seattle.gov/humanservices/seniorsdisabled/mosc/goldcard.htm Division of Developmental Disabilities Intake (point of entry) for all develpmentally disabled persons seeking state services. Source for respite care funds, medicaid personal care and family support information.
Region 2 (Yakima) 800-822-7840 Region 3 (Everett) 800-788-2053 Region 4 (Seattle) 800-314-3296 Region 5 (Tacoma) 800-248-0949 Region 6 (Olympia) 800-339-8227 Web: www1.dshs.wa.gov/ddd/index.shtml Infant Toddler Early Intervention Program (ITEIP) A collection of services families may need for their infants or toddlers with disabilities.
Web: www1.dshs.wa.gov/iteip The Washington State Developmental Disabilities Council is appointed by the Governor to promote a comprehensive system of services, and serve as an advocate and a planning body for Washington State's citizens with developmental disabilities.
2600 Martin Way East, Suite F Olympia, WA 98504 Tel: (800) 634-4473 Web: www.ddc.wa.gov
STATE/LOCAL EDUCATIONAL AGENCIES [back to top]WASHINGTONBellevue Community College Venture: The Degree Program for Unique Learners The Venture Program at Bellevue Community College has launched an Associate in Essential Studies (AES) Degree. This pilot program is the first degree program in America for students challenged with learning, cognitive, and intellectual disabilities.
Bellevue Community College 10700 Northup Way Bellevue, WA 98004-1416 Tel: (425) 564-2844 Web: http://www.bcc.ctc.edu/venture/ Options Program The Options Program at Eastside Catholic High School supports the belief that high school students with special needs deserve the opportunity, like their college-prep peers, to maximize their academic, social and spiritual potential. The Options Program offers specialized language-based instruction to a small number of students with mild to moderate developmental disabilities. Options courses are conducted in small groups and students’ academic performance ranges from second to sixth grade levels.
11650 S.E. 60th Bellevue, WA 98006 Tel: (425) 644-7737 Web: http://www.echs.bellevue.wa.us/eastcatholic.aspx?pgID=893 The Office of Superintendent of Public Instruction (OSPI) is the primary agency charged with overseeing K-12 education in Washington state.
Old Capitol Building P.O. Box 47200 Olympia, WA 98504-7200 Tel: (360) 725-6075 Web: www.k12.wa.us/specialed
STATE/LOCAL POLICY REFERENCES [back to top]This information is currently being compiled.
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