Local resources

 

Local organizations and professionals familiar with Williams syndrome and related issues are important resources.

To be listed here, service providers must be recommended by other families of individuals with Williams syndrome. These professionals either have direct expertise with Williams syndrome, or have provided excellent service to people with WS in the course of their standard practice.

In addition to direct service providers, it is important to have the right information for your locale since most organizations, agencies and regulations are administered at a local level. Many national organziations also have local offices and/or contacts in your area. Having local contacts for information can make your search for support much easier.

These local resources are listed here under the following headings.

If the services you are looking for, or the location you are residing in, are not listed here, please contact your Regional Co-Chair in person for further assistance.

 

DIRECT SERVICE PROVIDERS [back to top]

Dannette Cates, Parent-Educator Liaison Cesa 2 of Southeastern WI
Provide resources, trainings, and support to families who have children in special education programs in Kenosha, Racine, and Walworth Counties located in Southeastern WI.  

SPECIALISTS [back to top]

Children's Hospital of WI
414-266-6333
9000 W. Wisconsin Ave. Wauwatosa, WI

Waisman Center
University of Wisconsin-Madison 1500 Highland Ave. Madison, WI 53716 608-265-8107

LEGAL AND ADVOCACY SERVICES [back to top]

WI Coalition for Advocacy (WCA)
    16 N. Carroll St. Suite 400
    Madison, WI 53703
    Tel: 608-267-0214
 

FINANCIAL ASSISTANCE [back to top]

ARC Wisconsin Inc.
    600 Williamson Str.
    Madison, WI 53703
    Tel: 608-251-9272
 
March of Dimes  
Katie Beckett Program
The Katie Beckett Program is a special eligibility process that allows certain children with long term disabilities, emotion disturbances, or complex medical needs, living at home with their families, to obtain a Wisconsin Medicaid card.
    PO Box 7851
    Madison, WI 53707
    608-266-3236

    SUPPORT GROUPS/ORGANIZATIONS [back to top]

    Developmental Disabilities Network
      PO Box 7851
      Madison, WI 53707
      Tel: 608-267-7379
     
    Employment Resources Inc.
    Provide assistancance with SSI benefits, and to make informed choices about employment.
      4126 Lien Road Suite 104
      Madison, WI 53704
      Tel: 608-246-3444/1-877-826-1752
     
    Mothers United for Moral Support (MUMS)
     
    SE WI Regional Center for Children with Special Health Care Needs
    Provides information, referral, and assistance.
      PO Box 1997 MS 6220
      Milwaukee, WI 53201
      Tel: 1-800-234-5437
      Email: bholman@chw.org
     
    WI Council on Developmental Disabilities
      722 Williamson St.
      PO Box 7851
      Madison, WI 53707-7851
      Tel: 608-266-0805
     
    Wisconsin Statewide Parent-Educator Initiative (WSPEI)
    Service: Provide parental support and resource information throughout WI
      800 Wisconsin St.
      Eau Claire, WI 54703
      Tel: 877-844-4925
     
    The Autism Society of WI
     

    STATE/LOCAL SOCIAL SERVICES AGENCIES [back to top]

    WI Dept. of Health & Family Services
    Administers a variety of statewide health and social service programs.      

    STATE/LOCAL EDUCATIONAL AGENCIES [back to top]

    WI FACETS
    WI FACETS mission is to provide & to broaden opportunities that enhance the quality of life for children and adults with disabilities. WI FACETS
    2714 N. Martin Luther King Drive
    Milwaukee, WI 53212
    Toll Free; 1-877-374-4677
    Website www.wifacets.org

    WI Department of Public Instruction
    PO Box 7841 Madison, WI 53707-7841
    608-266-3390
    www.DPI.state.wi.us

    WSPEI
    Wisconsin Statewide Parent-Educator Initiative The WSPEI project suuports parents and educators throughout the state. The purpose of this support is to build positive partnerships among parents, schools and communities on behalf of children and youth with disabilities. 1-877-844-4925
    800 Wisconsin St. Building 2
    Mailbox 65 Suite 420-I
    Eau Claire, WI 54703

    STATE/LOCAL POLICY REFERENCES [back to top]

    DAWN
    DAWN (Disability Advocates: Wisconsin Network) is a statewide grassroots cross-disability advocacy network of people who want to work for change in the legislation, programs and systems affecting people with disabilities. www.dawninfo.org or 877-272-8400 (tollfree)

     

    Wrightslaw Website
    www.wrightslaw.com

     
© 2008 Williams Syndrome Association