Local organizations and professionals familiar with Williams syndrome and related issues are important resources.
To be listed here, service providers must be recommended by other families of individuals with Williams syndrome. These professionals either have direct expertise with Williams syndrome, or have provided excellent service to people with WS in the course of their standard practice.
In addition to direct service providers, it is important to have the right information for your locale since most organizations, agencies and regulations are administered at a local level. Many national organziations also have local offices and/or contacts in your area. Having local contacts for information can make your search for support much easier.
These local resources are listed here under the following headings.
If the services you are looking for, or the location you are residing in, are not listed here, please contact your Regional Co-Chair in person for further assistance.
This information is currently being compiled.
Please contact your Regional Director in person for further assistance.
This information is currently being compiled.
Please contact your Regional Director in person for further assistance.
LEGAL AND ADVOCACY SERVICES [back to top]
Service: Legal Estate Planning - Special Needs Trust
Mr. Toobin provides legal cousel and prepares estate planning documents for parents of children and dependents with special needs. Mr. toobin also conducts occasional seminars on Estate Planning for Special Needs in the Northern VA/DC Metro area and is affilitated with MetDESK (www.metlife.com/desk)
Service: Legal Advocacy
The LEGAL ADVOCACY CENTER fosters and supports legal services that will protect and advance the educational rights of students with disabilities in Virginia.
This information is currently being compiled.
Please contact your Regional Director in person for further assistance.
SUPPORT GROUPS/ORGANIZATIONS [back to top]
Service: Support, Services and Community Organization
The Partnership for People with Disabilities, formerly known as the Virginia Institute for Developmental Disabilities (VIDD), is recognized by the federal Administration on Developmental Disabilities as a university center for excellence in developmental disabilities.
STATE/LOCAL SOCIAL SERVICES AGENCIES [back to top]
Service: Virginia's Developmental Disabilities Planning Council
VBPD works to promote and guide public policy changes and create opportunities for new approaches in our service delivery systems.
STATE/LOCAL EDUCATIONAL AGENCIES [back to top]
Service: State Departmert of Education
Starting point for understanding and leveraging education resources in the State of Virginia; includes information of No Child Left Behind and Standards of Learning.
STATE/LOCAL POLICY REFERENCES [back to top]
This information is currently being compiled.
Please contact your Regional Director in person for further assistance.
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