 |
|
|
 |
 |
 |
 |
 |
 |
 |
 |
 |
 |
||||||||
 |
 |
 |
||||||
 |
||||||||
 |
 |
|||||||
Local resources
|
Local organizations and professionals familiar with Williams syndrome and related issues are important resources. To be listed here, service providers must be recommended by other families of individuals with Williams syndrome. These professionals either have direct expertise with Williams syndrome, or have provided excellent service to people with WS in the course of their standard practice. In addition to direct service providers, it is important to have the right information for your locale since most organizations, agencies and regulations are administered at a local level. Many national organziations also have local offices and/or contacts in your area. Having local contacts for information can make your search for support much easier. These local resources are listed here under the following headings.
If the services you are looking for, or the location you are residing in, are not listed here, please contact your Regional Co-Chair in person for further assistance.
DIRECT SERVICE PROVIDERS [back to top]WASHINGTONBoyer Children's Clinic Boyer Children’s Clinic is a non-profit therapy and early childhood educational facility under the medical direction of a developmental pediatrician, serving children from birth to ten years who have neuromuscular disorders such as cerebral palsy or delay in development.
1850 Boyer Avenue East Seattle, WA 98112 Tel: (206) 325-8477 Web: www.boyer.org Helping infants and children with special needs.
16120 N.E. eighth Street Bellevue, WA 98008 Tel: (425) 747-4004 Web: www.kindering.org
SPECIALISTS [back to top]WASHINGTONGeneTests A publicly funded medical genetics information resource developed for physicians, other healthcare providers, and researchers, available at no cost to all interested persons. Authoritative information on genetic testing and its use in diagnosis, management, and genetic counseling.
Children's Hospital and Regional Medical Center CN-1 P.O. Box 5371 4800 Sandpoint Way N.E. Seattle, WA 98105-0371 Web: www.genestest.org
LEGAL AND ADVOCACY SERVICES [back to top]NATIONALCouncil of Parent Attorneys and Advocates An independent, nonprofit, tax-exempt organization of attorneys, advocates and parents established to improve the quality and quantity of legal assistance for parents of children with disabilities.
1321 Pennsylvania Avenue S.E. Washington, DC 20003-3027 Tel: (202) 544-2210 Web: www.copaa.net Families and friends speaking on behalf of children with special health care needs.
3411 Candelaria N.E., Suite M Albuquerque, NM 87107 Tel: (888) 835-5669 Web: www.familyvoices.org The Arc of Washington State The Arc provides advocacy for people with developmental disabilities and their families.
6512 23rd Avenue, NW, Suite 213 Seattle, WA 98117 Tel: (206) 297-6368 Web: www.arcwa.org Pursuing justice on behalf of people with disabilities on matters related to their human, legal, and civil rights.
180 West Dayton, Suite 102 Edmonds, WA 98020 Tel: (425) 776-1199 Tel: (800) 562-2702 Web: www.wpas-rights.org
FINANCIAL ASSISTANCE [back to top]This information is currently being compiled.
SUPPORT GROUPS/ORGANIZATIONS [back to top]NATIONALExceptional Parent Magazine EP’s on-line resource. Providing information, support, ideas, encouragement and outreach for parents and families of children with disabilities, and the professionals who work with them.
65 East Route 4 River Edge, NJ 07661 Tel: (201) 489-4111 Web: www.exceptionalparent.com A family resource center serving parents and children with special needs.
3041 Olcott Street Santa Clara, CA 95054 Tel: (408) 727-5775 Web: www.php.com All Our Children A non-profit community based organization committed to serving children with special needs and their families.
428 N. Main Deer Park, WA 99006-0982 Tel: (509) 464-5595 Web: www.allourchildren.org Children's Hospital and Regional Medical Center Information and resources for parents and professionals who advocate and care for children with special health care needs.
Children's Hospital and Regional Medical Center 155 N.E. 100th Seattle, WA 98125 Tel: (206) 987-5735 Web: www.cshcn.org An ongoing gathering and information exchange for parents and caregivers of individuals with special needs. Sibshops Children's Hospital and Regional Medical Center Children's Sibshops for siblings of children with special health and developmental needs.
Children's Hospital and Regional Medical Center 155 N.E. 100th Seattle, WA 98125 Tel: (206) 987-1829 Web: www.seattlechildrens.org/parents/special/sibshops.htm A national program dedicated to the interests of brothers and sisters of people with special health and developmental needs.
6512 23rd Avenue, NW, Suite 213 Seattle, WA 98117 Tel: (206) 297-6368 Web: www.thearc.org/siblingsupport Recreational programs for people with disabilities.
1621 114th Avenue S.E., Suite 132 Bellevue, WA 98004-6905 Tel: (425) 462-0978 Web: www.skiforall.org Provide a year-round program of sports training and competition for children and adults with developmental disabilities.
2150 N. 107th Street, Suite 220 Seattle, WA 98133-9009 Tel: (800) 752-7559 Web: www.sowa.org A parent-directed organization, exists to increase independence, empowerment, and future opportunities for consumers with special needs, their families and communities, through training, information, referral and support.
6316 S. 12th Street Tacoma, WA 98465 Tel: (253) 565-2266 Tel: (800) 572-7368 Web: www.washingtonpave.org A network of 18 community-based, private, nonprofit child care resource and referral agencies across Washington State.
917 Pacific Avenue, Suite 600 Tacoma, WA 98402-4437 Tel: (800) 446-1114 Web: www.childarenet.org Their mission is to celebrate and support fathers and families raising children with special health care needs and developmental disabilities.
16120 N.E. 8th Street Bellevue, WA 98008-3937 Web: www.fathersnetwork.org The Coalition was formed in 1977 to bring parent and professional organizations together in a spirit of cooperation to share information, explore issues and effectively advocate for quality education for all children, particularily those with special needs in Washington State.
STATE/LOCAL SOCIAL SERVICES AGENCIES [back to top]WASHINGTONWashington State Department of Social & Health Services Division of Developmental Disabilities Intake (point of entry) for all develpmentally disabled persons seeking state services. Source for respite care funds, medicaid personal care and family support information.
Region 2 (Yakima) 800-822-7840 Region 3 (Everett) 800-788-2053 Region 4 (Seattle) 800-314-3296 Region 5 (Tacoma) 800-248-0949 Region 6 (Olympia) 800-339-8227 Web: www.wa.gov/dshs Infant Toddler Early Intervention Program (ITEIP) A collection of services families may need for their infants or toddlers with disabilities.
STATE/LOCAL EDUCATIONAL AGENCIES [back to top]WASHINGTONBellevue Community College Transitions Courses Transitions courses are designed to help prepare for independent living highly motivated young adults with mild cognitive delay and learning disabilities.
Bellevue Community College 3000 Landerholm Circle S.E. Bellevue, WA 98007-6484 Tel: (425) 564-2844 Web: www.conted.bcc.ctc.edu/trans/special.asp Options Program Eastside Catholic High School's Options Program offers specialized instruction to a small number of students with mild to moderate developmental disabilities.
Eastside Catholic High School 11650 S.E. 60th Bellevue, WA 98006 Tel: (425) 644-7737 ext. 303 Web: www.echs.bellevue.wa.us/options The Office of Superintendent of Public Instruction (OSPI) is the primary agency charged with overseeing K-12 education in Washington state.
Old Capitol Building P.O. Box 47200 Olympia, WA 98504-7200 Tel: (360) 725-6000 Web: www.k12.wa.us/specialed
STATE/LOCAL POLICY REFERENCES [back to top]This information is currently being compiled.
|
||