The Williams Syndrome Assocation is people: individuals with Williams syndrome and Williams syndrome-like characteristics, their families, and interested medical professionals and educators.
Founded by a handful of families in San Diego, CA, the WSA is a volunteer driven 501(c)(3) non-profit organization divided into 16 regions across the US and Puerto Rico. Each region works to provide social and educational opportunities for its members. The WSA also has affiliation with similar international groups.
The WSA has supported nearly 5000 families of individuals with WS since its inception.
The WSA is administered at four levels:
The Williams Syndrome Association is governed by a volunteer Board of Trustees. Board members are elected by the membership for 3 year terms, and may seek re-election. The Board establishes the direction of the association and works closely with the Executive Director and regional volunteers to carry out its goals.
The current Board is:
Nanci Rogers
West Lafayette, OH
Kevin Sturtevant
Takoma Park, MD
Ken Martin
Closter, NJ
Bruce Kohlen
Norman, OK
Sheila Seubold Levy
Louisville, KY
Al Davis
Richmond, VA
Nancy Hanson
Long Beach, CA
Pam O'Halloran
Tulsa, OK
Marshall Kiev
Westport, CT
Mike Morse
Parkton, MD
Deb Payne
Grant Pass, OR
DeEtta Myers
Alpharetta, GA
Kyle Archard
Anthony, FL
Dennis Fitzpatrick
New Haven, CT
For complete contact information for the Board members, please contact the WSA national office.
A full-time Executive Director handles all daily administration decisions, supports board programs and projects, actively seeks funding sources for those programs, and is the primary spokesperson for the Association. The Executive Director is assisted by an Office Manager and Program Administrator.
The current Executive Director is:
WSA Office
PO Box 297
Clawson, MI 48017-0297
Phone: 248-244-2229
Fax: 248-244-2230
Regional Chairs (and co-chairs) [back to top]
The WSA is divided into sixteen regional areas across the US. Each region is directed by one or more volunteer regional co-chairs and many regional representatives who provide
local information and support to families. All members of the WSA Administration have children or relatives with Williams syndrome, and all members are available to provide support and answer questions regarding WS and the WSA to families, professionals and the public.
The current Regional Directors are listed in the WS Community area.